New and Expecting Parents

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Whether you are celebrating your child’s birth or anticipating his or her arrival, we congratulate you.

We know this journey is not without its unique challenges and new experiences, but rest assured, you are not alone. Instead, you have become part of a large, deeply caring, and warmly welcoming community.

The New Parent Packet includes:

• Understanding Down syndrome
• Language Guidelines
• Developmental Expectations and Medical Issues
• What Parents Wish They’d Known
• Early Intervention Information
• Speech Resources and more

If you would like to discuss any aspect of what is offered here, please call the NDSC Center, toll-free, at 1-800-232-NDSC (6372), Monday through Friday from 9:00 AM to 5:30 PM eastern time.

Prenatal & Newborn Information

National Down Syndrome Congress, GLOBAL Down Syndrome Foundation, and National Down Syndrome Society have teamed up to publish the second edition of the groundbreaking Prenatal & Newborn Information Pamphlet, available in English, Spanish and Icelandic. The second edition, created from the first national survey of pregnant women and medical professionals, is easily accessible electronically, or in print at no cost.

Prenatal & Newborn Information Pamphlet – English

Información Prenatal – Spanish

Prenatal Testing Pamphlet – Icelandic

AAP Healthcare Guidelines and CDC Growth Charts

AAP Health Care Information for Families
You can print a checklist for your child’s age, to take with you to your pediatrician here:

• Checklist – prenatal
• Checklist – birth to 1 month
• Checklist – 1 month to 1 year
• Checklist – 1 year to 5 years

You can also print the Down Syndrome Growth Charts, updated by the CDC in November 2015

• Boy, Head circumference, Birth to 36 mos
• Boy, Length, Birth to 36 mo
• Boy, Weight, Birth to 36 mos
• Boy, Weight for Length, Birth to 36 mos
• Girl, Head circumference, Birth to 36 mos
• Girl, Length, Birth to 36 mos
• Girl, Weight, Birth to 36 mos
• Girl, Weight for Length, Birth to 36 mos

More information coming soon!