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Local & National Support Networks

Who can I look to for help and support?

The NDSC has connections to a wide-reaching network of local, regional, and national organizations serving people with Down syndrome and their families. Throughout history, this network has supported each other, learning and growing together into a dynamic community. As a member of our community, we offer our in-depth knowledge and support to you.

For parents and family members of individuals with Down syndrome, local organizations play a critical role in offering support, information and resources to the families and individuals with Down syndrome. They offer on-the-ground support to a diverse population in all corners of the United States.

Because these organizations are so valuable, we urge you to search our Affiliate Directory for a local Down syndrome organization closest to you to learn more and become involved. Please take a look at the organizations that partner with the NDSC on various projects and initiatives each year.

To request changes to contact information below please submit the updates on our DSA Directory update form.

National Resources

  • The Global Down Syndrome Foundation (GLOBAL)

    GLOBAL is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education, and advocacy.

    3239 E. 2nd Avenue
    Denver, CO 80206

    Phone: 303-321-6277

    Email: info@globaldownsyndrome.org

    Website: www.globaldownsyndrome.org

    Facebook: @GDSFoundation

  • Down Syndrome Affiliates in Action (DSAIA)

    DSAIA is a trade organization that works to support and advance the growth and service capabilities of its member local and regional Down syndrome organizations. It serves to be the conduit of value-driven training, programs, best practices, and support for its members.

    We are thrilled to announce that Down Syndrome Affiliates in Action has merged into the operations of the National Down Syndrome Congress!

    Fueld Collective
    Attn: NDSC
    3825 Edwards Road
    1st Floor, Suite 103
    Cincinnati, OH 45209

    Phone: 770-604-9500

    Email: info@dsaia.org

    Website: www.dsaia.org

    Facebook: @downsyndromeaia

  • Down Syndrome Diagnosis Network (DSDN)

    Supports parents who have recently received a diagnosis for their child or unborn baby by connecting them to other families touched by Down syndrome. Join one of their many private rockin’ mom ™ and dad online groups for new and expectant parents.

    PO Box 140
    Stillwater, MN 55082

    Phone: (612)460-0765

    Email: info@dsdiagnosisnetwork.org

    Website: www.dsdiagnosisnetwork.org

    Facebook: @DownSyndromeDiagnosisNetwork

  • The International Mosaic Down Syndrome Association (IMDSA)

    IMDSA provides support, information, and research to any family, individual, or professional whose life has been affected by mosaic Down syndrome.

    PO Box 354
    Trenton, OH 45067

    Phone: 888-MDS-LINK (888-637-5465)

    Website: www.imdsa.org

    Facebook:@IMDSA

  • The National Down Syndrome Adoption Network (NDSAN)

    NDSAN is a nonprofit program that offers support and information to parents whose child has received a diagnosis of Down syndrome and may be considering an adoption plan. They provide a listening ear and information and keep a registry of families from all over the United States who are interested in adopting a child with Down syndrome within the US. NDSAN is a nonprofit program and charges no fees for its services.

    c/o DSAGC
    644 Linn Street, Suite 1128
    Cincinnati, OH 45203
    Birth Parent Line: 513-213-9615
    Adoptive Parent Line: 513-709-1751

    Website: www.ndsan.org

    Facebook: @dsadoption

  • The National Down Syndrome Society (NDSS)

    NDSS is a national advocate for the value, acceptance and inclusion of people with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.

    666 Broadway
    New York, NY 10012

    Phone: 800-221-4602

    Email: info@ndss.org

    Website: www.ndss.org

    Facebook: @NDSS1979

  • NADS – National Association for Down Syndrome

    NADS is the oldest organization in the country serving individuals with Down syndrome and their families. It was founded in Chicago in 1961 by parents who chose to go against medical advice and raised their children with Down syndrome at home. Their pioneering efforts have made it easier for later generations of individuals with Down syndrome to be accepted by their families and communities, to develop their capabilities, and to work towards independence.

    Park Ridge, IL

    Phone: 630-325-9112

    Email: info@nads.org

    Website: www.nads.org

    Facebook:@NadsFan

  • Dads Appreciating Down Syndrome (D.A.D.S.)

    To assist and support, through fellowship and action, the fathers and families of individuals with Down syndrome.
    Indianapolis, IN

    Phone: 317-523-5888

    Email: john.goodrich@dadsnational.org

    Website: www.dadsnational.org

    Facebook: D.A.D.S. National (Dads Appreciating Down Syndrome)

  • Black Down Syndrome Association

    Black Down Syndrome Association
    Email: info@blackdownsyndrome.org
    Website: www.blackdownsyndrome.org

Local Resources

International Resources

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