Skip to main content

NDSC Insider Archive

Check out our past issues of NDSC Insider!

NDSC Insider | August 2026

And just like that... Our 2026 Convention is over! We are so thankful to all of the attendees, speakers, volunteers, staff, and self-advocates who made this such an unforgettable experience. See you next year in Denver!

 

Read below for Convention videos, policy updates, Big Game Ball information, and even a chance to win your dream trip!

One lucky winner will choose ONE incredible vacation package!

Raffle Tickets $100 Each or 3 for $250

Winner Announced September 2nd

 

Choose from destinations including:

  • Yukon, Canada – See the Northern Lights
  • Napa Valley, California – Wine Country Getaway
  • Hyatt Resorts in Mexico or Punta Cana
  • Cortona, Italy – Experience Tuscany
  • Offshore Saltwater Fishing Adventure (Continental U.S.)
  • New Orleans, Louisiana – The Big Easy
  • Porto, Portugal
  • Sedona, Arizona
  • Lake Tahoe, Nevada
  • Las Vegas, Nevada
  • Any College Sports Game in the Continental U.S.

Your prize includes accommodations and the experiences listed in your selected package. Transportation and airfare are not included.

Buy a raffle ticket

Big Game Ball

Wednesday, September 2, 2026

Chick-Fil-A College Football Hall of Fame

 

Big Game Ball honors postsecondary education programs serving those with intellectual disability and individuals and organizations advancing opportunities for those with Down syndrome.

 

Join us in celebrating our four incredible honorees!

 

  • Auburn University's EAGLES Program: EAGLES is Auburn University’s comprehensive transition program for students with intellectual disabilities. From academics and wellness to independent living and career readiness, the EAGLES Program empowers students to thrive.
  • Baylor University’s Center for Disability and Flourishing: The Baylor Center for Disability and Flourishing invests in research, training, outreach, and clinical services that promote the flourishing of people with disabilities, their families, and communities.
  • Aaron Murray: As a national board member of Extra Special People, Aaron plays an active leadership role in advancing the organization’s mission on a national level—helping shape strategy, expand impact, and advocate for programs that empower individuals with intellectual and developmental disabilities (IDD) through sports, education, and community connection.
  • 21 Down: 21 Down is the film adaptation of the true life story of Caden Cox, the young man who overcame widespread obstacles and stigmas to become the first person with Down syndrome to play and score in a college football game.
  • Chick-fil-A: Chick-fil-A consistently champions the IDD community through local restaurant initiatives, charitable grants, and intentional workplace inclusion efforts.
Purchase Tickets

Are you interested in sponsoring the 2026 Big Game Ball? Do you have items to donate to our silent auction? Email NDSC Development Coordinator Rachel Dekom at rachel@ndsccenter.org for more information!

National Down Syndrome Congress

Down Syndrome Policy Summit and Hill Day!

Registration deadline: September 1st

 

NDSC is proud to announce that on September 29 - 30, 2026, we will be hosting the Down Syndrome Policy Summit at the Omni Shoreham Hotel in Washington, D.C.! This event will feature one full day of advocacy training, where advocates will take crash courses on policy and speaking with elected officials and their staff. The next day is a Hill Day. Advocates will take to Capitol Hill, where they will meet with their elected officials and staffers to advocate for policy that directly affects people with Down syndrome.

 

We cannot wait for you to #AdvocateWithUs!

 

We know that cost can make it harder to attend—and we’re committed to making sure everyone has the opportunity to be there. That’s why we’re excited to offer this peer-to-peer fundraising platform, designed to help remove financial barriers and make your trip possible. Through this platform, you can raise funds with support from your community to help cover your travel and hotel expense for you and your family, so you can focus on showing up, learning, and making an impact.

 

This peer-to-peer platform enables individuals to raise funds to help cover part of their travel expenses for themselves and their family members. Donations would help cover hotel stays and airfare or ticketed ground transportation (such as Amtrak or Greyhound) to and from the event. Additionally, 25% of all funds raised will support NDSC’s policy and advocacy efforts throughout the year.

Register for the Summit!
Travel Assistance

Gifts & Challenges Exchange - caregiver conversations and support for those supporting adults with Down syndrome age 30+

 

Family engagement sessions for parents and caregivers of adults with Down syndrome 30 and older. These are facilitated group discussions led by Dr. Dennis McGuire and other guest professional experts, covering a range of relevant topics.

 

Next sessions:

  • August 26 at 1 PM EST
    • Dr. Dennis McGuire

Each session will emphasize shared conversation and peer support. The sessions are not recorded and are limited to 50 attendees. 

Get on the mailing list!

Thursday, August 27

1:00 - 2:30 PM EST

 

Helping to Secure the Financial Future of Individuals (of all ages) with Disabilities with MassMutual

 

When planning for the financial future of a loved one with a disability, there are many different aspects to consider, and planning will vary depending on their age. This workshop will discuss critical considerations for individuals of all ages who have a disability. We’ll review the importance of creating a life care plan, how it can help, and who should be involved. Learn crucial information and tools that may help in preparing for their financial future, such as government benefits, special needs trusts, ABLE accounts, and other legal and financial structures and considerations. Preparing for the financial future of a loved one with a disability can help ease the burden of the unexpected tomorrows. And help ensure that your loved one’s continued care and quality of life continues well into their future.

Register now

Check out our Orlando recap video!

Play
 

Video production: Ryan Gallagher

Follow Ryan on Facebook

Check out and share our Convention photos!

Save the date!

 

Denver, Colorado | Sheraton Downtown

July 15 - 18, 2027

DSAIA Leadership Conference

July 14 - 15, 2027

 

Call for Speakers!

Portal opens: October 1, 2026

 

Registration opens: March 9, 2027

Planning on going?

Invite your family and friends!

Share on Facebook

The driving force behind our hard work and dedication is our passion for all the children and adults with Down syndrome across the country that we serve. Our belief that we are making a difference in numerous lives keeps us energized and motivated to continue our efforts.

Become an NDAC member!

NDAC Member Exclusive!

 

Wednesday, August 19
2:00 PM ET | 1:00 PM CT
12:00 PM MT | 11:00 PM PT

 

We're excited to welcome the Maryland Down Syndrome Advocacy Coalition (MDAC), who will share the successful advocacy efforts that led the Maryland State Board of Education to prohibit identifying students for the alternate assessment before the IEP meeting immediately preceding third grade. Learn how advocates worked together to achieve this important policy change and what other states can learn from their experience.

 

Agenda Highlights
• Federal policy updates from the NDSC Policy Team
• NDSC Down Syndrome Policy Summit FAQ
State Advocacy Spotlight: Maryland Down Syndrome Advocacy Coalition

 

Can't attend live? No problem! The recording and slide deck will be shared with all NDAC members and posted in the private NDAC Facebook Group and the NDAC Member Portal.

This Educators Conference offers hands-on, research-based strategies that empower education professionals with proven tools and techniques that help students with Down syndrome and intellectual disabilities thrive.

 

Tuesday, September 15, 2026

9:00 AM to 3:00 PM EST

$50 registration

Hosted by: Down Syndrome Association of Delaware

 

Why Attend? 

  • Learn from top experts in the field
  • Gain practical strategies you can implement immediately in your classroom
  • Network with other professionals and build a supportive community

What topics are addressed? 

  • Addressing BEHAVIOR through effective strategies
  • Literacy strategies to facilitate READING DEVELOPMENT
  • Strategies for ACCESS and INCLUSION for all
  • Integrating ARTIFICIAL INTELLIGENCE in learning
  • Planning and designing CURRICULUM
  • MEDICAL IMPLICATIONS for the classroom

Don’t miss out on this incredible opportunity to elevate your teaching and support your students!

 

Questions? kim@ndsccenter.org

Register now!

National Down Syndrome Congress provides easy and accessible ways to engage your elected officials. When new and important legislation is introduced in the U.S. House of Representatives or the U.S. Senate or more support is needed for existing bills, we will notify you and request that you contact your Members of Congress. One simple way you can advocate is to register for NDSC’s Action Alerts. Action Alerts are template emails with information about the legislation and talking points that you can forward directly to your Members of Congress.

 

Sign up for Action Alerts today and take action to raise the voices of those in our community.

Take Action Now!

We are FUELED BY HOPE — the kind of hope you see in a smile, a milestone, or a moment of courage. Every day, we walk alongside children and adults with Down syndrome as they redefine what is possible. They work hard. They dream big. They show us what resilience truly means. But behind every achievement is a community that believes in them. A hand to steady them. A voice cheering them on. A place where they are seen, valued, and celebrated for exactly who they are. Your gift today becomes more than support — it becomes belonging. Hope is powerful. But hope in action changes lives.

DONATE

As you thoughtfully consider giving to our annual campaign, please know that your generosity helps us keep that hope burning bright for every person with Down syndrome who deserves the chance to shine.

Our Contact Information
*{{Organization Name}}*
*{{Organization Address}}*
*{{Organization Phone}}*
*{{Organization Website}}*


*{{Unsubscribe}}*

MENU CLOSE