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NDSC Insider | June 2026

Summer is officially here and we are just a few weeks away from the NDSC Convention in Orlando, Florida! Are you going to create magic with us this July?

 

Read on for more information on how to volunteer for the Convention, all Convention related activities, June Ages & Stages webinar, and more!

Orlando, Florida | Hilton Signia

July 23 - 26, 2026

Now featuring the DSAIA Pre-Con

July 22 - 23, 2026

 

Registration is now open!

Register now!

Volunteer at the 2026 NDSC Convention!

 

Looking to spend your summer doing something rewarding AND having fun? Volunteer for the 2026 NDSC Convention in Orlando, Florida!

 

Grab your friends, family, co-workers, classmates, or organization and help us to create unforgettable memories! Register now to become part of our wonderful team.

General Conference Volunteer Opportunities
3-Day Youth & Adult Volunteer Opportunities

Exhibit Hall Registration

now open!

 

 

Our exhibit hall is where your products and resources will get noticed! The Exhibit Hall showcases a variety of different products, organizations, and services that our community has to offer. Convention attendees will be able to browse all the different booths, collect information, check out the samples, and make important connections.

 

Exhibit Hall Information Packet
Become an exhibitor!

Attend our Educator's Conference in Orlando!

 

If you’re an educator, you don’t want to miss this!

 

Our next Educators Conference will be Friday, July 24, 2026 as a part of the 2026 NDSC Convention!

 

This unique conference offers practical, research-based strategies that general and special education teachers can immediately implement to support students with intellectual disabilities, including Down syndrome.

 

Registration is $150 and includes materials, breakfast and lunch, a certificate of attendance, and 0.6 CEUs for an additional $30.

Register for Educators Conference

Exhibit your postsecondary program at the 2026 College Fair!

 

Exhibit your inclusive postsecondary program at this year’s NDSC College Fair, sponsored by Think College!

 

Saturday, July 25 at the 2026 NDSC Convention

 

With approximately 3,500 in attendance, including over 400 self-advocates, the NDSC College Fair event perfectly showcases inclusive postsecondary programs for individuals with intellectual disability.

 

*College Fair Exhibitors must be part of an accredited community college, college, or university.

Exhibit at the 2026 NDSC College Fair

9th Annual Advocacy Training Boot Camp

 

Friday, July 24

8:00 AM - 11:30 AM

 

Advocacy Training Boot Camp (ATBC) helps parents, professionals, and self-advocates at all levels build their advocacy skills and confidence. Learn how advocacy works, hear real stories from experienced advocates, and pick up practical tips to engage with legislators effectively.

 

Advocacy Training Boot Camp is designed especially for beginning advocates and is free with your NDSC Convention registration. It is open to advocates of all abilities, including self-advocates, and offers a welcoming space to learn, grow, and get involved.

 

While registering for ATBC is encouraged, it is not required. You can add ATBC during your NDSC Convention registration. If you have already registered and would like to add it, please return to your registration portal or contact info@ndsccenter.com for assistance.

NDAC Member Exclusive

Town Hall

 

Saturday, July 25

8:00 AM - 9:00 AM

 

Sarah Mueller will be the featured guest at the NDAC Member Only Town Hall at the NDSC Convention.

 

As Disability Policy Director for the U.S. Senate Committee on Health, Education, Labor, and Pensions, Minority Staff, Sarah works on disability policy issues related to education, employment, health care, and Social Security programs. During the Town Hall, she will share insights into current policy issues and how Congressional committees help shape disability policy.

 

Not an NDAC member? Learn more or become a member by clicking the button below.

Become an NDAC member!

Down Syndrome Affiliates in Action

 

Are you proud of the work that your local Down syndrome organization has done? Do you have an amazing executive director? Nominate them for an affiliate award!

 

We would love to celebrate them at the upcoming DSAIA conference in Orlando!

DSAIA Nomination Form

Gifts & Challenges Exchange - caregiver conversations and support for those supporting adults with Down syndrome age 30+

 

Family engagement sessions for parents and caregivers of adults with Down syndrome 30 and older. These are facilitated group discussions led by Dr. Dennis McGuire and other guest professional experts, covering a range of relevant topics.

 

Next sessions:

  • June 24 at 1 PM EST
    • Dr. Dennis McGuire

Each session will emphasize shared conversation and peer support. The sessions are not recorded and are limited to 50 attendees. 

Get on the mailing list!

Wednesday, June 17

1:00 - 2:30 PM EST

 

Addressing Regulation Before Expectation: The need for understanding and addressing the sensory system with Monica Purdy and Jen Ray

 

Regulation is the body's ability to take in just the right amount of information from the outside world and process it accordingly. It enables an individual to access higher-level executive function skills, attention to task, motor planning, feeding, articulation, and language skills. Many individuals with the diagnosis of Down syndrome have difficulty in one or more of their sensory systems, which impacts their ability to communicate, participate, and react appropriately to stimulation from the environment.   In this session, the eight different sensory systems will be discussed, and parents and caregivers will learn about the importance of addressing the sensory system.

Register now

11 de junio 2026

12:00 PM ET

 

Esta presentación será una revisión de la guía práctica de la Academia Americana de Pediatría (American Academy of Pediatrics  - AAP) para los padres y familias con niños con síndrome de Down

Registración requerida aquí

National Down Syndrome Congress

Down Syndrome Policy Summit and Hill Day!

 

NDSC is proud to announce that on September 29 - 30, 2026, we will be hosting the Down Syndrome Policy Summit at the Omni Shoreham Hotel in Washington, D.C.! This event will feature one full day of advocacy training, where advocates will take crash courses on policy and speaking with elected officials and their staff. The next day is a Hill Day. Advocates will take to Capitol Hill, where they will meet with their elected officials and staffers to advocate for policy that directly affects people with Down syndrome.

 

We cannot wait for you to #AdvocateWithUs!

Register now!

The driving force behind our hard work and dedication is our passion for all the children and adults with Down syndrome across the country that we serve. Our belief that we are making a difference in numerous lives keeps us energized and motivated to continue our efforts.

Become an NDAC member!

More information coming soon!

 

To discuss sponsorship opportunities, please email Rachel Dekom at rachel@ndsccenter.org

 

Individual and table tickets go on sale July 1st.

National Down Syndrome Congress provides easy and accessible ways to engage your elected officials. When new and important legislation is introduced in the U.S. House of Representatives or the U.S. Senate or more support is needed for existing bills, we will notify you and request that you contact your Members of Congress. One simple way you can advocate is to register for NDSC’s Action Alerts. Action Alerts are template emails with information about the legislation and talking points that you can forward directly to your Members of Congress.

 

Sign up for Action Alerts today and take action to raise the voices of those in our community.

Take Action Now!

The driving force behind our hard work and dedication is our passion for all the children and adults with Down syndrome across the country that we serve. Our belief that we are making a difference in numerous lives keeps us energized and motivated to continue our efforts.

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