Policy Overview

The National Down Syndrome Congress (NDSC) is a national leader in disability rights, working to ensure that the voices of people with Down syndrome and their families are heard where it matters most—at the local, state, and federal levels. Based in Washington, D.C., the NDSC Policy & Advocacy Team is made up of experienced and well-respected professionals who are committed to advancing policies that promote equality, opportunity, and inclusion across all areas of life—from education and Medicaid, to healthcare to employment, financial security, and community living, and more.

NDSC is deeply committed to empowering self-advocates, family members, and allies with the tools they need to make a difference. Through our National Down Syndrome Advocacy Coalition (NDAC)—a grassroots network of advocates from all 50 states, including many self-advocates—we provide timely updates, action alerts, and opportunities to engage directly with lawmakers. We help individuals share their personal stories and experiences to create real policy change in their communities and across the country.

We also develop a wide range of resources—including advocacy toolkits, policy briefs, and one-pagers—to break down complex issues and help advocates of all experience levels get involved. Whether you’re just getting started or have years of experience, NDSC provides the training and support to amplify your impact. Each year, our Advocacy Training Boot Camp at the NDSC Annual Convention equips new and returning advocates with hands-on tools and strategies for effective advocacy.

NDSC is proud to work in coalition with other disability, civil rights, and human rights organizations, recognizing that lasting change is built through strong partnerships and collective action. We value collaboration, inclusivity, and the power of shared voices to drive progress for people with Down syndrome and the broader disability community.