Down Syndrome Clinic Listing
In addition to following the healthcare guidelines for individuals with Down syndrome and using the growth charts from the CDC (links can be found under “Basics of Proper Health Care” here), we have compiled and continue to update the information for Down syndrome clinics around the country. While individuals can be seen by pediatricians, internists, and family medical providers, families may wish to seek an appointment with one of the many providers who have significant experience with Down syndrome, if there is one located nearby.
University of Alabama at Birmingham
Phone:205-934-9411
Patient Age:Birth-21
Birmingham,AL
Website: www.childrensal.org
Phoenix Children Hospital
Phone:(602) 933-0670
Patient Age: Birth-18
Phoenix, AZ
Website:www.phoenixchildrens.org/centers-programs/barrow
Children’s Clinics Rehabilitative Services
Phone: (520)-324-5437
Patient Age: Birth-18
Tucson, AZ
Website:https://www.childrensclinics.org/
Arkansas Children Hospital GENETICS AND Metabolic Clinic
Phone: 501-364-1564
Patient Age: Birth – 18
Little Rock, AR
Website:www.archildrens.org/programs-services/a-to-z-services-list/genetic-disorders/genetics-and-metabolic-clinic
University of Arkansas Medical Sciences Dennis Development Center
Phone:(501)-364-1830
Patient Age: 10- Adult
Little Rock, AR
Website:https://pediatrics.uams.edu/clinical-programs-affiliates/dennis-developmental-center/
Lucile Packard Children’s Hospital-Stanford Center for Down Syndrome
Phone:(650)-723-6858
Patient Age: Birth – 18
Alto, CA
Website:http://www.stanfordchildrens.org/en/service/down-syndrome
UCSF Benioff Children’s Hospital Oakland Charlie’s Clinic
Phone:(510)-428-3301
Patient Age: Birth-21
Oakland CA
Website:https://sites.google.com/view/charlies-clinic/home?authuser
Children Hospital of Orange County Children’s Neurology (Associated with CHOC) Genetics Center (Associated with CHOC)
Phone:(714)-509-3609
Patient Age: Birth – 18
Orange, CA
Website:https://geneticscenter.com/
Down Syndrome Center at Rady Children’s Hospital – San Diego
Phone:(858)-966-8855
Patient Age: Birth – 18
San Diego, CA
Website:https://www.rchsd.org/programs-services/down-syndrome-center/
UC Irvine Adult DS Clinic
Phone:(714)-456-8443
Patient Age: 21 and older
Website:https://www.dsaoc.org/uci-adult-primary-care-down-syndrome-clinic.html
UCSD Adult DS Clinic
Phone:(858)-657-8540
Patient Age: 35 and older
Website: https://health.ucsd.edu/specialties/neuro/specialty-programs/Pages/down-syndrome-center.aspx
Linda Crnic Institute, Children’s Hospital Colorado
Phone:(720)-777-6750
Patient Age: Birth-21
Aurora, CO
Website: www.childrenscolorado.org
Federico F. Pena Southwest Family Health Center Denver Adult DS Clinic
Phone:(303)-436-4949
Patient Age: 21 years and older
Denver, CO
Website:https://www.denverhealth.org/services/denver-health-and-global-down-syndrome-foundation-launch-pilot-adult-down-syndrome-clinic
University of Connecticut Health Center Human Genetics
Phone:(860)-523-6470
Patient Age: All
West Hartford, CT
Website:https://health.uconn.edu/medical-genetics
Yale
Phone:(203)-688-6361
Patient Age: 18-adult
New Haven, CT.
Website:https://medicine.yale.edu/genetics/genetics/appointments/
A.I. duPont Hospital for Children/Nemours
Phone: (302)-651-4200
Patient Age: Birth- 21
Wilmington, DE
Website:www.nemours.org
Wilmington Hospital; Christiana Care Health System
Phone:(302)-320-6300
Patient Age: 18 and up
Wilmington, DE
Website:https://christianacare.org/services/primarycare/center-special-health-care-needs-primary-care/
1601 Northwest 12 Avenue Miami, FL 33136
Hope Haven Children’s Clinic / Down Syndrome Center
Phone:(904)-346-5100
Patient Age: Prenatal – 21
Jacksonville, FL
Website: www.hope-haven.org
The Howard Phillips Center for Children and Families
Phone: (407)-648-7802
Orlando, FL
Website:https://www.arnoldpalmerhospital.com/pediatric-specialties
Mailman Center for Child Development University of Miami
Phone:(305)-243-6631
Miami, FL
Website:http://pediatrics.med.miami.edu/mailman-center
Adult Disability Medical Home
Phone:(678)-595-4854
Patient Age: 14 – Adult
Marietta, GA
Website:www.theadmh.org
Emory Down Syndrome Clinic
Phone:(404)-778-1363
Patient Age: Birth – 18
Decatur, GA
Website:http://genetics.emory.edu/clinical
Advocate Lutheran General Hospital -Adult DS Center
Phone:(847)-318-2303
Patient Age: 12 – Adult
Park Ridge, IL
Website: https://www.advocatehealth.com/health-services/adult-down-syndrome-center/
University of Chicago Medicine Comer Clinic
Phone:(773)-702-3095
Chicago, IL
Website:http://www.uchicagokidshospital.org/specialties/
Lurie Children’s Northwestern – Chicago
Phone: (800)-543-7362
Chicago,IL
Website:https://www.luriechildrens.org
Riley Hospital for Children at Indiana University Health
Phone:(317)-944-4846
Patient Age: Birth -18
Indianapolis, IN
Website:https://www.rileychildrens.org/departments/down-syndrome-program
Deaconess Hospital and Riley Hospital for Children
Phone:(812) 450-5000
Patient Age: Birth – 19
Newburgh, IN
Website:http://www.deaconess.com/
Peyton Manning Children’s Hospital- St Vincent
Phone:(317)-338-5288
Patient Age: Birth- 18
Indianapolis, IN
Website:http://www.peytonmanningch.org/
University of Iowa Hospitals and Clinics
Phone:1-855-543-2884
Patient Age: All
Iowa City, Iowa
Website:https://uichildrens.org/medical-services/center-disabilities-and-development
Adults with Down Syndrome Specialty Clinic – Univ of Kansas Medical Center
Patient Age:Adult
Phone:913-588-5000
Kansas City,KS
Website: www.kumc.edu
Children’s Hospital of New Orleans
Phone:(504)-896-9254
Patient Age: All
New Orleans, LA
Website:www.chnola.org
Ochsner Hospital for Children Down Syndrome Clinic
(504)493-2019
Patient Age: 2-18 (<2 are seen in High Risk Newborn Clinic)
New Orleans, LA
https://www.ochsner.org/boh
University of Maryland Children’s Hospital
Phone:(410)-706-2300
Patient Age: Birth – 21
Baltimore, MD
Website:http://umm.edu/programs/childrens/services/behavioral-and-developmental
Kennedy Krieger Institute
Phone:(443)-923-9400
Patient Age: Birth – 21
Baltimore, MD
Website:https://www.kennedykrieger.org/
Mass General Hospital
Phone:(617)-643-8912
Patient Age: All
Boston, MA
Website:https://www.massgeneral.org/children/down-syndrome
Boston Children Hospital
Phone:(857)-218-4329
Patient Age: Birth-21
Boston, MA
Website:www.childrenshospital.org/downsyndrome
Tewksbury Hospital/ Aging and Developmental
Phone:978-851-7821 x2390
Patient Age:45+
Tewksbury, MA
Website:https://www.mass.gov/locations/tewksbury-hospital
UMASS Memorial
Phone:508-856-5520
Worcester, MA
Website: www.umassmemorialhealthcare.org
Doctors’ Hospital of Michigan Free Standing Private Therapy Clinic
Phone:(248)-857-6776
Patient Age: Birth- Adults
Pontiac, MI
Website:europeds.org
Children’s Minnesota Down Syndrome Clinic Children’s Hospitals and Clinics of Minnesota
Phone: (612)-813-7240
Patient Age: Birth-19
Minneapolis, MN
Website:www.childrensmn.org/services/care-specialties-departments/down-syndrome/
University of Kansas Medical Center, Dept. of Family Medicine
Phone:913-588-1915
Patient Age:21 and older
Kansas City, KS
Website:http://www.kumc.edu
Albert Pujols Wellness Center for Adults with DS
Phone:(314)-576-2300
Patient Age:17-older
Chesterfield, MO
Website:stlukes-stl.com/services/wellness-center/index.html
St. Louis Children’s Hospital
Phone:(314) 747-4088
Patient Age: Birth-21
St. Louis, MO
Website:https://www.stlouischildrens.org/conditions-treatments/down-syndrome-center
Children’s Mercy Hospital
Phone:(816)-960-2856
Patient Age: Birth – 18 years
Kansas City, MO
Website:childrensmercy.org/downsyndrome
Shodair Children Hospital
Phone:(406)-444-7530
Patient Age: All
Helena, MT
Website:https://shodair.org/
Children’s Hospital and Medical Center Down Syndrome Clinic
Phone: 402-955-6100
Patient Age: birth to 18
Omaha, NE
Website: www.childrensomaha.org/department/downsyndrome
Facebook: @ChildrensOmaha
NYU Langone Hospital- Long Island
Phone:(516)-663-2112
Garden City, NY
Website:https://nyulangone.org/locations/nyu-langone-ambulatory-care-garden-city/pediatric-diabetes-and-endocrinology-care
John R. Oishei Children’s Hospital & Jacobs School of Medicine and Biomedical Sciences at the University at Buffalo
Phone:(716)-323-6410
Patient Age: Birth-8
Buffalo, NY
Website:https://www.ochbuffalo.org/care-treatment/robert-warner-rehabilitation-center
Levine Children’s Hospital at Carolinas Medical Center
Phone: (704)-381-6810
Patient Age: All
Charlotte, NC
Website:www.levinechildrenshospital.org/body
Duke
Phone:(919)-684-0307
Patient Age: Pediatric
Durham, NC
Website:https://www.dukehealth.org/treatments/genetic-disorders/downsyndrome
Sanford Health Fargo
Phone:701-234-2000
Fargo, North Dakota
Website:https://www.sanfordhealth.org/doctors/lacey-rust
Akron Children’s Hospital
Phone:330-543-8050
Akron, Ohio
Website:https://www.akronchildrens.org/
Cincinnati Children’s Hospital Medical Center
Phone: 513-636-4200
Patient Age: Birth-21
Cincinnati, Ohio
Timothy Freeman, MD, Center for Intellectual and Developmental Disabilities
Phone: 513-585-9009
Patient Age: 18 and up
Cincinnati, OH
Website:https://med.uc.edu/institutes/uc-timothy-freeman-md-center-for-intellectual-and-developmental-disabilities/
Rainbow Babies and Children’s Hospital
Phone:216-983-1220
Cleveland, OH
Website:https://www.uhhospitals.org/rainbow/services/pediatric-emotional-and-behavioral-disorders
Nationwide Hospital
Phone:(614) 722-4050
Patient Age:Pediatrics
Columbus,OH
Website: www.nationwidechildrens.org
Nisonger Center – Ohio State University
Phone:(614) 685-6701
Patient Age: Adults
Columbus,OH
Website: www.nnisonger.osu.edu
Oregon Health & Science University, Doernbecher Children’s Hospital
Phone:503-346-0640
Patient Age: Birth-21
Portland, Oregon
Website:https://www.ohsu.edu/doernbecher
Down Syndrome Center of Western PA
Phone: (412) 692-7963
Patient Age: Birth – through adulthood
Pittsburgh, PA
Website: www.chp.edu/downsyndrome
Eastern Pennsylvania Down Syndrome Center’s
Phone:(610) 402-0184
Patient Age: Birth – 18
Trexlertown, PA
Website:http://www.epdsc.net/
Children’s Hospital of Philadelphia (CHOP)
Phone:267-426-5283
Patient Age: Birth- 21
Philadelphia, PA
Website:http://www.chop.edu/centers-programs/trisomy-21-program
Life Span
Phone:401-444-3500
Patient Age: Birth-18
Providence, RI
Website:https://www.lifespan.org/centers-services/childrens-rehabilitation-services
Greenwood Genetic Center
Phone:864-941-8100
Patient Age: Prenatal
Greenwood, SC
Website:https://www.ggc.org/
Medical University of South Carolina Children’s Hospital
Phone:843-792-3531
Charleston, SC
Website:https://musckids.org/our-services/down-syndrome-center
Prisma Children’s Healthcare Palmetto Health Richland
Phone:803-434-1260
Patient Age: Birth-18
Columbia, SC
Website:https://www.palmettohealthchildrens.org/services/pediatric-physical-and-specialty-therapy/our-specialty-programs
Sanford Childrens Down Syndrome Clinic
Phone:605-312-1000
Patient Age: 0-21
Sioux Falls, SD
Website:https://www.sanfordhealth.org/locations/sanford-childrens-specialty-clinic
Monroe Carell Jr. Children’s Hospital at Vanderbilt DS Clinic
Phone: (615) 343-3696
Patient Age: Birth – 18
Nashville, TN
Website:http://www.childrenshospital.vanderbilt.org/
Children’s Medical Center of Dallas
Phone: 214-456-2357
Patient Age: Birth – 18
Dallas, TX
Website:www.childrens.com/specialties-services/specialty-centers-and-programs
Baylor Transition Medicine Clinic
Phone: 713-798-6333
Patient Age – 18 and up
Houston, TX
Website:www.bcm.edu/departments/medicine/sections-and-divisions/transition-medicine/healthcare
Texas Children’s Hospital and Baylor College of Medicine
Phone:832-822-3400
Patient Age: Birth-18
Houston, TX
Website:https://www.texaschildrens.org/departments/down-syndrome-clinic/our-team
Primary Children’s Medical Center
Phone: 801-662-1600
Patient Age: Pediatric (Birth – 18)
Salt Lake City, UT
Website:https://intermountainhealthcare.org/locations/primary-childrens-hospital/medical-services/
Children’s Hospital of the King’s Daughters, Eastern Virginia Medical Center
Phone:(757) 668-7473
Norfolk, VA
Website:https://www.chkd.org/our-doctors/medical-specialists/developmental-pediatrics/
Down Syndrome Program at Virginia Mason
Phone:(425)-557-8000
Patient Age: Birth-18
Issaquah, WA
Website:www.virginiamason.org/down-syndrome
Down Syndrome Specialty Clinic, University of Washington Medical Center Center on Human Development and Disability (CHDD)
Phone:206-598-3327
Patient Age: Birth- 18
Seattle WA
Website:https://depts.washington.edu/chdd/ucedd/ctu_5/5_ctumain.html?x=4&y=79
Kid Care Pediatrics
Phone:(304) 925-0392
Patient Age: Birth-18
Charleston, WV
Website:https://www.kidcarepediatricswv.com/newpage1
Gundersen Health System
Phone:(608) 775-2599
Lacrosse,WI
Patient Age: Birth- 18
Website:https://www.gundersenhealth.org/services/pediatric-care/specialty/down-syndrome-clinic/
Children’s Hospital of Wisconsin
Phone:(414) 266-6259.
Patient Age: Birth-18
Milwaukee, WI
Website:https://chw.org/medical-care/down-syndrome-clinic
Waisman Center
Phone:608-263-3301
Patient Age: Birth-21
Madison, WI
Website:https://www.waisman.wisc.edu/clinics/down-syndrome/
This list is in partnership with DSMIG. Visit the DSMIG website