Programs & Resources

Local and National Support Networks

Who can I look to for help and support?

The NDSC has connections to a wide-reaching network of local, regional, and national organizations serving people with Down syndrome and their families. Throughout history, this network has supported each other, learning and growing together into a dynamic community. As a member of our community, we offer our in-depth knowledge and support to you.

For parents and family members of individuals with Down syndrome, local organizations play a critical role in offering support, information and resources to the families and individuals with Down syndrome. They offer on-the-ground support to a diverse population in all corners of the United States.

Because these organizations are so valuable, we urge you to search our Affiliate Directory for a local Down syndrome organization closest to you to learn more and become involved. Please take a look at the organizations that partner with the NDSC on various projects and initiatives each year.

To request changes to contact information below please submit the updates at www.ndsccenter.org/dsa-directory-update.

NATIONAL RESOURCES

The Global Down Syndrome Foundation (GLOBAL)

GLOBAL is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education, and advocacy.

3239 E. 2nd Avenue
Denver, CO 80206
Phone: 303-321-6277
Email: info@globaldownsyndrome.org
Website: www.globaldownsyndrome.o rg
Facebook: @GDSFoundation

Down Syndrome Affiliates in Action (DSAIA)

DSAIA is a trade organization that works to support and advance the growth and service capabilities of its member local and regional Down syndrome organizations. It serves to be the conduit of value-driven training, programs, best practices, and support for its members.

PO Box 2122
Bismarck, ND 58502
Phone: 701-425-7129
Email: info@dsaia.org
Website: www.dsaia.org
Facebook:@downsyndromeaia

Down Syndrome Diagnosis Network (DSDN)

Supports parents who have recently received a diagnosis for their child or unborn baby by connecting them to other families touched by Down syndrome. Join one of their many private rockin’ mom ™ and dad online groups for new and expectant parents.

PO Box 140
Stillwater, MN 55082
Phone: (612)460-0765
Email: info@dsdiagnosisnetwork.org
Website: www.dsdiagnosisnetwork.org
Facebook: @DownSyndromeDiagnosisNetwork

The International Mosaic Down Syndrome Association (IMDSA)

IMDSA provides support, information, and research to any family, individual, or professional whose life has been affected by mosaic Down syndrome.

PO Box 354
Trenton, OH 45067
Phone: 888-MDS-LINK (888-637-5465)
Website: www.imdsa.org
Facebook: @IMDSA

LuMind IDSC Down Syndrome Foundation

LuMind IDSC accelerates research to increase the availability of therapeutic, diagnostic, and medical care options and empowers families through education, connections, and support.

20 Mall Road, Suite 200
Burlington, MA 01803-4126
Phone: 781-825-1300
Email: LuMindIDSC@LuMindIDSC.org
Website: LuMind IDSC
Facebook: @LuMindlDSC

The National Down Syndrome Adoption Network (NDSAN)

NDSAN is a nonprofit program that offers support and information to parents whose child has received a diagnosis of Down syndrome and may be considering an adoption plan. They provide a listening ear and information and keep a registry of families from all over the United States who are interested in adopting a child with Down syndrome within the US. NDSAN is a nonprofit program and charges no fees for its services.

c/o DSAGC
644 Linn Street, Suite 1128
Cincinnati, OH 45203
Birth Parent Line: 513-213-9615
Adoptive Parent Line: 513-709-1751
Website: www.ndsan.org
Facebook: @dsadoption

The National Down Syndrome Society (NDSS)

NDSS is a national advocate for the value, acceptance and inclusion of people with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.

666 Broadway
New York, NY 10012
Phone: 800-221-4602
Email: info@ndss.org
Website: www.ndss.org
Facebook: @NDSS1979

NADS – National Association for Down Syndrome
NADS is the oldest organization in the country serving individuals with Down syndrome and their families. It was founded in Chicago in 1961 by parents who chose to go against medical advice and raised their children with Down syndrome at home. Their pioneering efforts have made it easier for later generations of individuals with Down syndrome to be accepted by their families and communities, to develop their capabilities, and to work towards independence.
Park Ridge, IL
Phone: 630-325-9112
Email: info@nads.org
Website: www.nads.org
Facebook:@NadsFan

Dads Appreciating Down Syndrome (D.A.D.S.)
To assist and support, through fellowship and action, the fathers and families of individuals with Down syndrome.
Indianapolis, IN
Phone: 317-523-5888
Email: john.goodrich@dadsnational.org
Website: www.dadsnational.org
Facebook:D.A.D.S. National (Dads Appreciating Down Syndrome)

ALABAMA

Down Syndrome Alabama
Birmingham, AL
Phone: 205-988-0810
Email: downsyndromealabama@gmail.com
Website: www.downsyndromealabama.org
Facebook: @dsacares

FRIENDS
Dothan, AL
Phone: 334-726-2075
Email: info.downsyndromefriends@gmail.com
Website: www.DownSyndromeFRIENDS

Coastal Alabama Down Syndrome Society
Mobile, AL
Phone: 888-454-0317
Email: cadss@cadss.org
Website: www.cadss.org
Facebook: @dssmobile

Bringing Up Down Syndrome BUDS
Madison, AL
Phone: 214-729-6606
Email: BUDS@budsonline
Website: www.budsonline.org
Facebook:@bringingupdownsyndrome

Montgomery Area Down Syndrome Outreach Group
Montgomery, AL
Email: montgomeryareadownsyndrome@gmail.com
Website: www.montgomeryareadownsyndrome.com
Facebook:@MADSOGPublic

The Arc of Shelby County
Pelham, AL
Phone:205-664-9313
Email:kstokes@thearcofshelby.org
Website:www.thearcofshelby.org
Facebook:@thearcofshelbyco

Miracle Mullen Downs Foundation
Birmingham, Alabama
Phone:205-283-4015
Email:mmdownsfoundation@yahoo.com
Website:www.facebook.com/MiracleMullenDownsFoundation
Facebook:@MiracleMullenDownsFoundation

ALASKA

Alaska Down Syndrome Network
Anchorage, AK
Phone: 907-667-6677
Website: www.akdownsyndrome.org
Facebook: @AKNDSC

ARIZONA

Sharing Down Syndrome Arizona! Inc
Gilbert, AZ
Phone: 480-926-6500
Email: gina@sharingds.org
Website: www.sharingds.org
Facebook:@SharingDownSyndromeAZ

Down Syndrome Network AZ
Phoenix, AZ
Phone: 480-759-9150
Email: info@dsnetworkaz.org
Website: www.dsnetworkaz.org
Facebook:@DSNetworkAZ

Southern Arizona Network for Down Syndrome
Tucson, AZ
Phone: 520-312-2030
Email: info@sandsaz.org
Website: www.sandsaz.org
Facebook:@southernarizonanetworkfordownsyndrome

Leti Foundation
Tempe, AZ
Phone:480-567-6148
Email:tgpalma@icloud.com
Website:www.letifoundation.com

Gigi’s Phoenix, AZ
Phoenix, AZ
Phone:(480) 451-PLAY (7529)
Email:phoenix@gigisplayhouse.org
Website:gigisplayhouse.org/phoenix/
Facebook:@GigisPlayhousePhoenix

ARKANSAS

Arkansas Down Syndrome Association
Little Rock, AR
Phone: 501-223-3696
Email: contact@ardownsyndrome.org
Website: www.ardownsyndrome.org
Facebook:@ardownsyndromeassociation

Down Syndrome Connection of Northwest Arkansas
Springdale, AR
Phone:479-644-9208
Email: jennifermcwhorter@dscnwa.com
Website: www.dscnwa.com
Facebook:@DSCNWA

Disability Rights Arkansas 
Little Rock, AR
Phone:501-269-1775
Email:info@disabilityrightsar.org
Website:www.disabilityrightsar.org
Facebook:@DisabilityRightsAR

Arkansas Down Syndrome Network
Little Rock, AR
Email:ardsnetwork@gmail.com
Website:https://www.facebook.com/groups/1056050221178935
Facebook:@arkansasdownsyndromenetwork

GiGi’s Playhouse Little Rock
Little Rock, AR
Phone:(501) 246-5654
Email:littlerock@gigisplayhouse.org
Website:gigisplayhouse.org/littlerock/
Facebook:@gigisplayhouselittlerock

CALIFORNIA

Down Syndrome Association of Orange County
Costa Mesa, CA
Phone: 714-540-5794
Email: info@dsaoc.org
Website: www.dsaoc.org
Facebook:@DSAOC

Down Syndrome Connection of the Bay Area
Danville, CA
Phone: 925-362-8660
Email: info@dscba.org
Website: DSCBA.org
Facebook:@DSCBA

Club 21
Pasadena, CA
Phone: 626-844-1821
Email: info@clubtwentyone.org
Website: www.clubtwentyone.org
Facebook:@club21happiness

Down Syndrome Information Alliance
Sacramento, CA
Phone: 916-658-1686
Email: info@downsyndromeinfo.org
Website: www.downsyndromeinfo.org
Facebook:@DSIA21

Down Syndrome Association of Central California
Fresno, CA
Phone: 559-228-0411
Email: info@dsacc.org
Website: www.dsacc.org

Brighter Side of Down Syndrome
Stockton, CA
Phone:209-910-4231
Email: info@tbods.org
Website: twos.org

Down Syndrome Association North Bay
Santa Rosa, CA
Phone: 707-537-8001
Email: dihobaugh@sbcglobal.net
Website: www.dsanb.org
Facebook:@DSANB

Inland Valley Down Syndrome Association
Rancho Cucamonga, CA
Phone: 833-483-7221
Email: info@ivdsa.org
Website: www.ivdsa.org
Facebook:@DSACC

Tulips and Triumphs
Newbury Park, CA
Email: jjmcjloper@verizon.net

Down Syndrome Foundation of Orange County
Newport Beach, CA
Phone: 949-757-1177
Email: info@dsfoc.org
Website: www.dsfoc.org
Facebook:@downsyndromefoundation

Down Syndrome Association of San Diego
San Diego, CA
Phone: 619-594-7389
Website: www.dsasdonline.org
Facebook: Down Syndrome Association of San Diego

DS Action
San Diego, CA
Phone: 619-694-4615
Email: sharla.hank@dsaction.com
Website: www.dsaction.com
Facebook:@dsaction

Silicon Valley Down Syndrome Network
San Jose, CA
Phone: 408-771-4796
Email: info@svdsn.com
Website: www.svdsn.org
Facebook:@svdsn

Down Syndrome Special Needs Network
Santa Maria, CA
Phone: 805-937-9458
Email: hofflouise@aol.com

The Arc Solano /Solano Parents United for Down Syndrome
Vallejo, CA
Phone: 707-552-2935
Email: arcgforcier@gmail.com
Website: www.thearcsolano.org
Facebook:@TheArcSolano

Down Syndrome Association of Los Angeles
Van Nuys, CA
Phone: 818-786-0001
Email: info@dsala.org
Website: www.dsala.org
Facebook:@DownSyndromeAssociationLA

BUDS of the Redwoods
Eureka, CA
Email:NCBWalk@gmail.com
Website:www.budsoftheredwoods.com
Facebook:@BudsOfTheRedwoods

Parents Helping Parents 
San Jose, CA
Phone:408-727-5775
Email:info@php.com
Website:www.php.com
Facebook:@ParentsHelpingParentsSanJose

Kern Down Syndrome Network
Bakersfield, CA
Phone:661-234-8006
Email:info@kerndsn.org
Website:www.kerndsn.org
Facebook:@kerndsn

Special Parents Information Network (SPIN)
Santa Cruz, CA
Phone:831-722-2800
Email:info@spinsc.org
Website:www.spinsc.org
Facebook:SPIN – Special Parent Information Network

California Down Syndrome Advocacy Coalition 
Email:cadsadvocacy@gmail.com
Website:https://cdacblog.wordpress.com/
Facebook:@CADsAdvocacy

San Diego Down Syndrome Playgroup
San Diego, CA
Email: sddsplaygroup@gmail.com
Website: https://sddsplaygroup.com

You Are Awesome 
Los Angeles, CA
Email:fanfan.w.yaa@gmail.com

COLORADO

Colorado Springs Down Syndrome Association
Colorado Springs, CO
Phone: 719-633-1133
Email: info@csdsa.org
Website: www.csdsa.org
Facebook:@CSDSA.org

Rocky Mountain Down Syndrome Association
Denver, CO
Phone: 303-797-1699
Email: info@rmdsa.org
Website: www.rmdsa.org
Facebook:@rmdsa21

CONNECTICUT

Down Syndrome Association of Connecticut
New Britain, CT
Phone: 888-486-8537
Email: info@mydsact.org
Website: www.mydsact.org
Facebook:@mydsact

Lighthouse Voc-Ed Center
New London, CT
Phone:860-445-7626
Email:info@lvecenter.com
Website:lhcampus.com
Facebook:@lighthousevocedcenter

DELAWARE

Down Syndrome Association of Delaware
Middletown, DE
Phone: 302-995-1004
Email:info@dsadelaware.org
Website: www.dsadelaware.org
Facebook:@DSAofDelaware

FLORIDA

Gold Coast Down Syndrome Organization
Boynton Beach, FL
Phone: 561-752-3383
Email: gcdso@bellsouth.net
Website: www.Goldcoastdownsyndrome.org
Facebook:Gold Coast Down Syndrome Organization

Down Syndrome Association of Jacksonville
Jacksonville, FL
Phone: 904-353-6300
Email: dsaj@bellsouth.net
Website: www.dsaj.org
Facebook:@dsajacksonville

Down Syndrome Association of Central Florida
Orlando, FL
Phone: 407-478-5621
Email: info@dsacf.org
Website: www.dsacf.org
Facebook:@DSACF

Fun Coast Down Syndrome Association
Palm Coast, FL
Phone: 386-447-8034
Email: funcoastdown@bellsouth.net
Website: www.funcoastdownsyndrome.com
Facebook:@funcoastdown

Down Syndrome Association of Brevard
Merritt Island, FL
Phone 321-576-3296
Email: info@dsabrevard.org
Website: www.dsabrevard.org
Facebook:@DSABrevard

21 & Change, Inc.
Riverview, FL
Phone: 910-273-7049
Email: info@21andchange.org
Website: www.21andchange.org
Facebook:@21andChange

Manasota BUDS
Bradenton, FL
Phone: 941-907-0499
Email: info@manasotabuds.org
Website: www.manasotabuds.org
Facebook:@ManasotaBUDS

F.R.I.E.N.D.S. Support
Brandon, FL
Phone: 813-245-2782
Email: info@friendssupport.org
Website: www.friendssupport.org
Facebook:@FRIENDSDownSyndromeWestFlorida

Treasure Coast Down Syndrome Awareness Group
Hobe Sound, FL
Phone: 772-546-7057
Email: sacs01@bellsouth.net
Website: www.tcdownsyndromeag.org
Facebook:@tcdsag

Down Syndrome Foundation of Florida
Orlando, FL
Phone: 407-760-9395
Email: camille.gardiner@dsfflorida.org
Website: www.dsfflorida.org
Facebook:@DSFFlorida

Broward Gold Coast Down Syndrome Organization
Sunrise, FL
Phone: 954-577-4122
Email: ddebraga@bgcdownsyndrome.org
Website: www.bgcdownsyndrome.org
Facebook:@BachTodaroSupportDownsyndrome

Down Syndrome Association of Miami
Miami, Flordia
Phone:305-218-8233
Email:info@dsaom.org
Facebook:@DownSyndromeMiami

Down Syndrome Association of Northwest Flordia
Tallahassee, FL
Phone:850-476-3724
Email:momsunshine03@bellsouth.net

Down Syndrome Association of Tallahassee
Tallahassee, FL
Phone:850-298-8187 ext.74370
Email:excutivedirector@dstallahassee.com
Website:www.dsatallahassee.com
Facebook:@DSATallahassee

Down Syndrome Foundation of Flordia
Orlando, FL
Phone:407-484-4273
Email:info@dsfflordia.org
Website:www.dsfflordia.org
Facebook:@DSFFlorida

Families Exploring Down Syndrome- Brevard
Cocoa Beach, FL
Phone:321-480-4796
Email:info@fedsofbrevard.org
Website:www.fedsofbrevard.org
Facebook:@BrevardBuddyWalk

Flordia Keys Down Syndrome Educational Trust
Key Largo, FL
Phone:305-942-3967
Email:contactus@fkdset.org
Website:www.fkdset.org
Facebook:@fkdset

GEORGIA

Down Syndrome Association of Atlanta
Atlanta, GA
Phone: 404-320-3233
Email: info@dsaatl.org
Website: www.dsaatl.org
Facebook:@DSAAtlanta

Down Syndrome Association of South Georgia
Valdosta, GA
Phone:(229) 412-4311
Email:info@dsasouthga.org
Website:www.dsasouthga.org
Facebook: Down Syndrome Association of South Georgia

Lowcountry Down Syndrome Society
Savannah, GA
Phone:912-436-3626
Email:info@ldssga.org
Website:www.ldssga.org
Facebook:@ldssga

Down Syndrome Association of Middle Georgia
Macon, GA
Email:zachary.kennedy@dsmag.org
Website:www.dsamg.org
Facebook: DSAMG321

Upside of Downs
Augusta, GA
Phone: 706-799-5347
Email: kkstrite@gmail.com
Facebook: Upside of Downs-Augusta, GA

Down Syndrome West Georgia Inc.
Franklin, GA
Email:downsyndromewestga@gmail.com
Website:www.facebook.com/pg/Downsyndromewetgabuddywalk
Facebook:@Downsyndromewetgabuddywalk

HAWAII

Down Syndrome ‘Ohana of Hawaii
Honolulu, HI
Phone: 808-843-2502
Email: ds_ohana@yahoo.com
Website: www.dsohawaii.com
Facebook:Down Syndrome ‘Ohana of Hawaii

Big Island Down Syndrome ‘Ohana
Hilo, HI
Phone: 808-209-7131
Email: meriah@meriahnichols.com
Website: www.dsohawaii.com
Facebook:Down Syndrome ‘Ohana of Hawaii

IDAHO

Down Syndrome Connections NW
Hayden, ID
Phone: 208-755-5079
Email: info@dsconnections.com
Website: www.dsconnections.com
Facebook:@Dsconnectionsnw

Treasure Valley Down Syndrome Association
Meridian, ID
Phone: 208-378-9912
Email: president@idahodownsyndrome.org
Website: www.idahodownsyndrome.org
Facebook:@TVDSA

Eastern Idaho Down Syndrome Family Connect
Idaho Falls, ID
Phone:208-716-6504
Email:info@easternidahodownsyndrome.org
Website:www.easternidahodownsyndrome.org
Facebook:@eastidahodownsyndrome

Down Syndrome Connections Northwest
Hayden, ID
Phone: 208-755-5079
Email: info@downsyndromeconnections.com
Website: www.dsconnectionsnw.org
Facebook:@Dsconnectionsnw

ILLINOIS

Heart of Illinois Down Syndrome Association
Morton, IL
Phone: 309-712-4852
Email: info@hoidsa.org
Website: www.hoidsa.org
Facebook:@HOIDSA

Central IL Down Syndrome Organization
Normal, IL
Phone: 309-452-3264
Email: cidsobusiness@gmail.com
Website: www.cidso.org
Facebook:@CIDSO.org

Gigi’s Playhouse
Hoffman Estates, IL
Phone: 847-885-7529
Email: info@gigisplayhouse.org
Website: www.gigisplayhouse.org
Facebook:@gigisplayhousehoffmanestates

Gigi’s Playhouse McHenry County
McHenry, IL
Phone: 815-385-7529
Email: mchenry@gigisplayhouse.org
Website: www.gigisplayhouse.org/mchenry
Facebook:@gigismchenryCo

Champaign County Down Syndrome Network
Champaign, IL
Phone: 217-351-4163
Email: info@champaigndsn.org
Website: www.champaigndsn.org
Facebook:CCDSN

Livingston Area Down Syndrome Society
Chatsworth, IL
Phone: 815-689-2202
Email: info@ladss.org

Riverbend Down Syndrome Association
Glen Carbon, IL
Phone: 618-667-8771
Email: secretary@riverbendds.org
Website: www.riverbendds.org
Facebook:@riverbendds

UPS for DownS
Schaumburg, IL
Phone: 847-895-2100
Email: info@upsfordowns.org
Website: www.upsfordowns.org
Facebook:@upsfordowns

Lincoln Land Down Syndrome Society
Springfield, IL
Phone: 217-741-1832
Email: jason.schnepp@gmail.com
Website: www.lldss.org
Facebook:@LincolnLandDownSyndromeSociety

NADS – National Association for Down Syndrome
Park Ridge, IL
Phone: 630-325-9112
Email: info@nads.org
Website: www.nads.org
Facebook:@NadsFan

Celebrate Differences
Oswego, IL
Phone:630-885-3006
Email:info@celebratedifferences.org
Website:www.celerbratedifferences.org
Facebook: Celebrate Differences

Supporting Illinois Brothers and Sisters
Schaumburt, IL
Phone:708-989-3619
Email:info@sibsnetwork.org
Website:www.sibsnetwork.org
Facebook: @sibsnetwork

Down Syndrome Support
New Lenox, IL
Phone:815-272-1068
Email:info@dssupport.net
Website:www.dssupport.net
Facebook:@ChicagolandBuddyWalk

Family Ideas Network for Down Syndrome
Crystal Lake, IL
Phone:815-575-9864
Email:onepercent2@gmail.com
Website:www.findsdownsyndrome.com
Facebook: Family Ideas Network for Down Syndrome (FINDS)

Kankakee Area Down Syndrome Society 
Chicago, IL
Phone:815-210-8944
Email:info@kadss.org
Facebook: Kankakee Area Down Syndrome Society

GiGi’s Playhouse Rockford
Machesney Park, IL 61115
Phone: 815-654-7529
Email: rockford@gigisplayhouse.org
Facebook: @GiGi’s Playhouse Rockford

Lilly’s Playground Foundation 
Wadsworth, IL
Phone:815-210-8944
Email:mpotosina@gmail.com
Website:www.lillysplayground.org
Facebook: @lillysplayground

INDIANA

Down Syndrome Indiana
Indianapolis, IN
Phone: 317-925-7617
Email: info@dsindiana.org
Website: www.dsindiana.org
Facebook:@DownSyndromeIndiana

Down Syndrome Association of Northeast Indiana
Ft. Wayne, IN
Phone: 260-471-9964
Email: dsani4u@aol.com
Website: www.dsani.org
Facebook:@dsanortheastindiana

Down Syndrome Family Connection
Bloomington, IN
Phone: 812-720-9603
Email: Cyndi@downsyndromefamilyconnection.org
Website: www.downsyndromefamilyconnection.org
Facebook:@DownSyndromeFamilyConnection

Down Syndrome Association of Central Indiana
Carmel, IN
Phone: 317-574-9757
Email: MKaye62801@aol.com

Elkhart Co. Down Syndrome Support Group

Goshen, IN
Phone: 574-534-3931
Email: ecdssg@mac.com
Website: www.ecdssg.org
Facebook: Elkhart County Down Syndrome Support Group

Michiana Down Syndrome
Granger, IN
Phone: 574-334-7734
Email: info@michianadownsyndrome.org
Website: www.michianadownsyndrome.org
Facebook:@MichianaDownSyndromeFamilySupportAdvocacyGroup

Down Syndrome Association of Northwest Indiana
Highland, IN
Email: dsa@dsaofnwi.org
Website: www.dsaofnwi.org
Facebook:@dsaofnwi

Dads Appreciating Down Syndrome (D.A.D.S.)
Indianapolis, IN
Phone: 317-523-5888
Email: john.goodrich@dadsnational.org
Website: www.dadsnational.org
Facebook:D.A.D.S. National (Dads Appreciating Down Syndrome)

SMILE on Down Syndrome
Newburgh, IN
Phone: 812-49-6049
Email: nina@smileondownsyndrome.org
Website: www.smileondownsyndrome.org
Facebook:@smilemileevansville

Chasing Dreams
Merrillville, IN
Phone:219-299-9049
Email: contact@chasingdreams.org
Website:www.chasingdreams.org
Facebook:@chasingdreamsinc

Columbus Area Down Syndrome Support Group
Columbus, IN
Phone:812-375-9594
Website:www.cadssg.org
Facebook: Columbus Area Down Syndrome Support Group

Down Syndrome Northwest Indiana & Chicagoland
Highland, IN
Phone:219-838-3656
Email:dsa@dsaofnwi.org
Website:www.dsaofnwi.org
Facebook:@dsaofnwi

IOWA

Northwest Iowa Down Syndrome Society
Spencer, IA
Phone: 712-580-6671
Website: www.nwiadownsyndromesociety.org
Facebook: Northwest Iowa Down Syndrome Society

Hawkeye Area Down Syndrome Association
Cedar Rapids, IA
Email: eharlan@hadsa.org
Website: www.hadsa.org
Facebook:@HawkeyeAreaDownSyndrome

Tri-State Down Syndrome Network
Sioux Center, IA
Phone: 712-722-2142
Email: tristatedsnetwork@gmail.com
Facebook: Tri-State Down Syndrome Network

Designer Genes Down Syndrome Group
Waterloo, IA
Email: designergenes2005@yahoo.com
Facebook:@designergenesdsg

Down Syndrome Assocation of North Central Iowa
Mason, City, IA
Phone:704-491-6503
Email:dsanorthcentraliowa@gmail.com
Website: www.dsa-nci.com
Facebook:@DSAofNCI

KANSAS

Down Syndrome Innovations
Mission, KS
Phone: 913-384-4848
Email: info@kcdsi.org
Website: kcdsi.org
Facebook:@KCDSI
Instagram: @kcdsg

Arcare Inc
Overland Park, KS
Phone: 913-648-0233
Email:
Website: www.arcare.org
Facebook:@arcarekc

Down Syndrome Society of Wichita
Wichita, KS
Phone: 316-651-0114
Email: info@dsswichita.org
Website: www.dsswichita.org
Facebook:@dsswichita

Southeast Kansas Down Syndrome Society
Chanute, KS
Phone:620-431-0470
Email:info@sekdss.com
Facebook:@sekdss

KENTUCKY

Down Syndrome Association of Central Kentucky
Lexington, KY
Phone: 859-494-7809
Email: dsack.org@gmail.com
Website: www.dsack.org
Facebook:@TheDownSyndromeAssociationofCentralKentucky

Down Syndrome of Louisville, Inc.
Louisville, KY
Phone: 502-495-5088
Email: info@dsoflou.org
Website: dsoflou.org
Facebook:@DownSyndromeOfLouisville

Down Syndrome of South Central Kentucky
Bowling Green, KY
Phone: 270-796-5002
Email: info@dssky.org
Website: www.dssky.org
Facebook:@dssky.buddyhouse

Green River Area Down Syndrome Association
Owensboro, KY
Phone: 270-925-0195
Email: info@gradsa.org
Website: www.gradsa.org
Facebook:@GRADSA

Stewart Home School
Frankfort, KY
Phone:502-227-4821
Email:info@stewarthome.com
Website: www.stewarthome.com
Facebook:@stewarthomeschool

Ups-n-Downs of Western Kentucky
Paducah, KY
Phone:270-444-9687
Email:upsndowns@dsawk.com
Website:www.dsawk.com 

LOUISIANA

Down Syndrome Association of Acadiana
Lafayette, LA
Phone: 337-234-3109
Email: dsaa@dsaa.info
Website: www.dsaa.info
Facebook:@DSAAcadiana

Upside down, Inc.
Thibodaux, LA
Phone: 985-447-8188
Email: info@upside-downs.org
Website: www.upside-downs.org
Facebook:@upsidedowns1

Down Syndrome Association of Greater New Orleans
New Orleans, LA
Phone: 504-259-6201
Email: info@dsagno.org
Website: www.dsagno.org
Facebook:@dsagno

Down Syndrome Awareness Group
Baton Rouge, LA
Website: www.dsagbr.org
Facebook:@dsagbr

Up with Downs
Shreveport, LA
Phone: 318-797-8575
Email: upwithdowns318@gmail.com
Website: www.upwithdowns.org
Facebook: Up With Downs

Families Helping Families of Southwest Louisana
Baton Rouge, LA
Phone:337-436-2570
Email:info@fhfswla.org
Website:www.fhfswla.org
Facebook:@fhfswla

Up4Downs of Southwest Louisana
Lake Charles, LA
Phone:337-582-6138
Email:dseaux@up4downswla.org
Website:www.up4downswla.org
Facebook:@DSAofSWLA

MAINE

Maine Down Syndrome Network
Windham, ME
Phone: 866-571-2223
Email: info@dsmaine.org
Website: www.dsmaine.org
Facebook:@dsmaine

MARYLAND

Down Syndrome Association of Maryland
Baltimore, MD
Phone: 410-321-5434
Email: director@DSAmd.org
Website: www.DSAmd.org
Facebook:@DSAMaryland

Down Syndrome Network of Montgomery County (DSNMC)
Rockville, MD
Phone: 301-979-1112
Email: admin@dsnmc.org
Website: www.dsnmc.org
Facebook:@dsnmcmaryland

Anne Arundel County Down Syndrome Connection
Arnold, MD
Phone: 888-279-2279
Email: t21connection@yahoo.com
Website: www.downsyndromeconnection.com
Facebook:@dsconnectionaac

F.R.I.E.N.D.S
Middletown, MD
Phone: 301-371-7047
Email: friendsoffredco@gmail.com
Website: www.friendsoffredco.org

Parents of Children with Down Syndrome of Prince George’s County
Fort Washington, MD
Phone:301-925-7050
Email:podsofpgc@gmail.com
Website:www.podsopgc.org
Facebook:@podsofpgc

Down Syndrome Association of Southern Maryland
Hughesville, MD
Phone:240-461-4361
Email:info@dsasmd.org
Website:https://www.dsasmd.org
Facebook: Down Syndrome Association of Southern Maryland

MASSACHUSETTS

Massachusetts Down Syndrome Congress
Burlington, MA
Phone: 781-221-0024
Email: mdsc@mdsc.org
Website: www.mdsc.org
Facebook:@massdscongress

Berkshire County ARC Down Syndrome Family Group
Pittsfield, MA
Phone: 413-499-4241
Email: mtiffany@bcarc.org
Website: www.bcarc.org/programs/dsfg
Facebook:@BCArcDSFG

Down Syndrome Resource Group of Western MA
Springfield, MA
Phone: 800-536-2910, 413-794-8342
Email: info@dssupport.org
Website: www.dssupport.org
Facebook:@DSRGWM

MICHIGAN

Down Syndrome Association of West Michigan
Grand Rapids, MI
Phone: 616-956-3488
Email: info@dsawm.org
Website: www.dsawm.org
Facebook:@dsawestmi 

St. Clair County Down Syndrome Support Group
Port Huron, MI
Phone: 810-987-7928
Email: alyndamc@yahoo.com
Facebook: St. Clair County Down Syndrome Support Group

Capital Area Down Syndrome Association
Lansing, MI
Phone: 517-333-6655
Email: info@cadsa.org
Website: www.cadsa.org
Facebook:@CADSA21

Down Syndrome Guild of Southeast Michigan
Royal Oak, MI
Phone: 248-556-5341
Email: info@dsgsemi.org
Website: www.dsgsemi.org
Facebook:@dsgsemi

Families Exploring Down Syndrome
Sterling Heights, MI
Phone: 586-200-4879
Email:fedsofmichigan@gmail.com
Website: www.familiesexploringdownsyndrome.org
Facebook:@FamiliesExploringDownSyndromeOfMichigan

Down Syndrome Association of Northwest Michigan
Traverse City, MI
Phone:(231) 357-8383
Email:dsupnorth@gmail.com
Website:https://www.dsupnorth.org
Facebook:@DSUpNorth

Down Syndrome Support Team
Saline, MI
Phone: (313) 608-7374
Email: eluther@downsyndromesupportteam.com
Website: www.downsyndromesupportteam.com
Facebook: Down Syndrome Support Team

MINNESOTA

Down Syndrome Association of Minnesota
St. Paul, MN
Phone: 651-603-0720
Email: dsamn@dsamn.org
Website: www.dsamn.org
Facebook:@DSAMN

Jack’s Baskets 
Arden Hills, MN
Phone:651-456-8321
Email:info@jacksbasket.org
Website:www.jacksbasket.org
Facebook:@jacksbasket

MISSISSIPPI

Northeast Mississippi Down Syndrome Society
Saltillo, MS
Email: nemdss@bellsouth.net
Website: NEMDSS
Facebook: Northeast Mississippi Down Syndrome Society (NEMDSS)

Gulf Coast Down Syndrome Society 
Gautier, MS
Phone:228-447-0270
Email:info@gcdss.org
Website:www.gcdss.org
Facebook:@gcdssinc

Mississippi Down Syndrome Advocacy Coalition
Email:mdscac21@gmail.com
Facebook:@MDSAC21

Central Mississippi Down Syndrome Society
Jackson, MS
Phone: 601-385-DOWN (3696)
Email: info@cmdss.org
Website: https://cmdss.org/

MISSOURI

Down Syndrome Association of Greater St. Louis, Inc.
St. Louis, MO
Phone: 314-961-2504
Email: info@dsagsl.org
Website: www.dsagsl.org
Facebook:@dsagsl

Down Country
Taylor, MO
Phone: 217-617-3568
Email: info@upatdowncountry.com
Website: www.upatdowncountry.com

Down Syndrome Group of the Ozarks
Springfield, MO
Phone: 417-885-9905
Email: info@ozarksdsg.org
Website: www.dsgo.life
Facebook:@dsgo.life

MONTANA

Montana Down Syndrome Association
Missoula, MT
email: Philip@mtdsa.org
website: www.mtdsa.org
Facebook:@MontanaDSAKalispell

DREAM (Down syndrome Research Education and Advocacy of Montana)
Whitefish, MT
Phone:406-599-2556
Email:dreambuddywalk@gmail.com
Website:www.dream-mt.org
Facebook:@mtdreamers

Yellowstone County Extra Special Kids
Billings, MT
Phone:406-256-0469
Email:christina0469@msn.com

NEBRASKA

Down Syndrome Association for Families of Nebraska
Lincoln, NE
Phone: 402-421-1338
Email: info@dsafnebraska.org
Website: www.dsafnebraska.org
Facebook:@dsafnebraska.org

Down Syndrome Advocates in Action Nebraska
Lincoln, NE
Phone: 402-413-0199
Email: info@dsanne.org
Website: www.dsaane.org
Facebook:@dsaane

Down Syndrome Alliance of the Midlands
Omaha, NE
Phone: 531-375-5791
Email: info@dsamidlands.org
Website: www.dsamidlands.org
Facebook:@omahadownsyndrome

Little Leaf Learning Center
Omaha, NE
Phone:402-515-7234
Email:kim@mylittleleaf.org
Website: www.llcdownsyndromeeducation.com
Facebook:@LittleLeafLearningCenter

Children’s Hospital and Medical Center Down Syndrome Clinic
Omaha, NE
Phone: 402-955-6100
Website: www.childrensomaha.org/department/downsyndrome
Email: tnorton@childrensomaha.org
Facebook: @ChildrensOmaha

NEVADA

Down Syndrome Organization of Southern Nevada
Las Vegas, NV
Phone: 702-648-1990
Email: ceo@dsosn.org
Website: www.dsosn.org
Facebook:@DownSyndromeSNV

Down Syndrome Network of Northern Nevada
Reno, NV
Phone: 775-828-5159
Email: dsnnninfo@gmail.com
Website: www.dsnnn.org
Facebook:@DSNNN

Pahrump Disability Outreach Program 
Pahrump, NV
Phone:702-516-0847
Email:staff@pdop.info
Website:http://www.pahrumpdisabilityoutreachprogram.com/index.html
Facebook:@PahrumpDisabilityOutreachProgram

Down Syndrome Connections Las Vegas
Las Vega, NV
Phone: 702-875-5007
Email: downsyndromeconnectionslv@gmail.com
Website: www.downsyndromeconnections.org
Facebook:@downsyndromeconnectionslv

NEW HAMPSHIRE

New Hampshire Down Syndrome Association
Londonderry, NH
Phone: 603-479-1589
Email: info@newhampshiredsa.org
Website: www.newhampshiredsa.org
Facebook:@NewHampshireDSA

NEW JERSEY

BUDS “Bringing Up Down Syndrome”
Voorhees, NJ
Phone: 856-985-5885
Email: information@bringingupdownsyndrome.org
Website: www.bringingupdownsyndrome
Facebook:@bringingupdownsyndrome

Down Syndrome Association of Southern New Jersey
Bellmawr, NJ
Email: cochair@dsasnj.com
Website: www.dsasnj.com
Facebook:Down Syndrome Association of Southern New Jersey

Jersey Shore Down Syndrome Association
Brick, NJ
Phone: 732-255-5737
Website: www.jsdsa.org
Facebook:@jsdsa

Network 21
Tinton Falls, NJ
Phone: 908-309-1588
Email: mjrobertson510@gmail.com
Website: www.dsnetwork21.com
Facebook:Network21: Supporting Families with Down Syndrome

Down Syndrome Association of Central New Jersey
Ewing, NJ
Phone: 866-369-6796
Email: dsacnj@dsacnj.org
Facebook: Down Syndrome Association of Central New Jersey

21 Down
Northfield, NJ
Phone: 609-625-8141
Email: info@21down.org
Website: www.21down.org
Facebook:21Down

Central New Jersey Down Syndrome Parent Advocacy Group
North Plainfield, NJ
Phone:908-756-6774
Email:dsparentgroupnj@gmail.com
Website:www.dsparentgroup.org

Down Syndrome Support Group of Family Resources Associates  
Red Bank, NJ
Phone:732-747-5310
Email:info@frainc.org
Website:www.frainc.org
Facebook:@FRAOnline

NEW MEXICO

Down Syndrome Foundation of Southeastern New Mexico
Roswell, NM
Phone: 575-622-1099
Email: info@dsfsenm.org
Website: www.dsfsenm.org
Facebook:@DownSyndromeFoundationOfSenm

Rio Grande Down Syndrome Network
Albuquerque, NM
Phone: 505-382-5061; 505-382-5067
Email: info@rgdsn.org
Website: www.rgdsn.org
Facebook:@RGDSN

NEW YORK

Down Syndrome Parent Support Group of Genesee County
Oakfield, NY
Email: dspsg1@gmail.com
Website: www.downsyndromegenesee.org
Facebook:@dspsggc

Alexander’s Angels
Jericho, NY
Phone: 516-361-7263
Email: alexandersangels321@gmail.com
Website: www.alexandersangels.org
Facebook: Alexander’s Angels

Down Syndrome Parent Group of Western New York
Tonawanda, NY
Phone: 716-832-9334
Email: dspgwny@gmail.com
Website: www.dspgwny.org
Facebook:@DSPGWNY

Down Syndrome Aim High Resource Center, Inc.
Albany, NY
Phone: 518-738-0020 x 3726
Email: info@dsahrc.org
Website: www.cfdsny.org/dsahrc
Facebook:@DSAHRC

Down Syndrome Association of the Hudson Valley
Gardiner, NY
Phone: 845-226-1630
Email: info@dsahv.org
Website: www.dsahv.org
Facebook:@DSAHV

Arc of Westchester
Hawthorne, NY
Phone: 914-949-9300
Email: info@arcwestchester.org
Website: www.arcwestchesterarc.org
Facebook:@ArcWestchesterNY

Down Syndrome Info Network of the Twin Tiers
Horseheads, NY
Phone: 607-734-6151
Email: dsintt@gmail.com
Website: www.downsyndromeintt.org
Facebook:@dsintt

Flower City Down Syndrome Network
Rochester, NY
Phone: 585-568-7421
Email: fcdsn21@gmail.com
Website: www.fcdsn.com
Facebook:@fcdsn

Down Syndrome Network of Northern New York
Watertown, NY
Phone: 315-788-0869
Facebook:@Tri21nny

Kennedy-Willis Center on Down Syndrome
Edmeston, NY
Phone:607-965-8655
Email:kwc@pathfindervillage.org

GiGi’s Playhouse (New York City)
New York, NY
Phone:646-801-7529
Email:nyc@gigisplayhouse.org
Website:gigisplayhouse.org/newyork
Facebook:@gigisplayhouseNYC

GiGi’s Playhouse (Westchester) 
Ardsley, NY
Phone:914-479-5566
Email:westchester@gigisplayhouse.org
Website:gigisplayhouse.org/westchester/
Facebook:@gigisplayhousewestchester

NORTH CAROLINA

Down Syndrome Network of Onslow & Carteret Counties
Jacksonville, NC
Phone: 910-719-3321
Email: president@dsnocc.org
Website: www.dsnocc.org
Facebook:@DSNOCC

Down Syndrome Association of Greater Charlotte
Charlotte, NC
Phone: 704-536-2163
Email: info@dsa-gc.org
Website: www.dsagreatercharlotte.org
Facebook:@DSAGreaterCharlotte

North Carolina Down Syndrome Alliance
Raleigh, NC
Phone: 984-200-1193
Email: info@ncdsalliance.org
Website: www.ncdsalliance.org
Facebook:@NorthCarolinaDownSyndromeAlliance

Down Syndrome Network of Greater Greensboro
Greensboro, NC
Phone: 336-832-6507
Email: dsngginfo@gmail.com
Website: www.dsngg.org
Facebook:@dsngg

Cumberland County NC Down Syndrome Association
Lillington, NC 27546
Phone: 910- 922-5024
Email: ccncdsa@gmail.com

Western North Carolina Down Syndrome Alliance
Asheville, NC
Phone:828-707-3753
Email:alicemillerdsa@charter.net
Website:wncdsa.org
Facebook:@WNCDSA

Down Syndrome Association of Greater Winston-Salem
Winston-Salem, NC
Phone: 336-739-DOWN (3696)
Email: info@dsagws.org
Website: www.dsagws.org
Facebook:@dsagws

NORTH DAKOTA

Designer Genes of North Dakota
Bismarck, ND
Email: info@designergenesnd.com
Website: www.designergenesnd.com
Facebook:@DesignerGenesND

BUDS of Greater Grand
Greater Grand, ND
Email:buds.news@gmail.com
Website:www.facebook.com/pg/budsggf
Facebook:@budsggf

GiGi’s Playhouse Fargo
Fargo, ND
Phone:701-551-7529
Email:fargo@gigisplayhouse.org
Website:gigisplayhouse.org/fargo/
Facebook:@gigisplayhousefargo

OHIO

Down Syndrome Association of Greater Cincinnati
Cincinnati, OH
Phone: 513-761-5400
Email: dsagc@dsagc.com
Website: www.dsagc.com
Facebook:@DSAGC

The Up Side of Downs of Northeast Ohio
Independence, OH
Phone: 216-447-8763
Email: info@usod.org
Website: www.usod.org
Facebook:@upsideofdowns

Specs4US
Burton, OH
Phone:1-800-586-1885
Email:info@specs4us.com
Website:www.specs4us.com
Facebook:@SPECS4US

Down Syndrome Association of Greater Toledo
Sylvania, OH
Phone: 419-536-4321
Email: information@dsagt.org
Website: www.dsagt.org
Facebook:@dsatoledo

Down Syndrome Association of Central Ohio
Columbus, OH
Phone: 614-263-6020
Email: info@dsaco.net
Website: www.dsaco.net
Facebook:@DSACO.Cbus

Miami Valley Down Syndrome Association
Dayton, OH
Phone: 937-222-0744
Email: office@mvdsa.org
Website: www.mvdsa.org
Facebook:@MiamiValleyDSA

The Down Syndrome Association of the Valley
Boardman, OH
Phone: 330-726-3728
Email: info@dsav.org
Website: www.dsav.org
Facebook:@DownSyndromeAssociationoftheValley

The Ups of Downs
Wellsville, OH
Phone: 330-532-3684
Email: info@theupsofdowns.org
Website: www.theupsofdowns.org
Facebook: The Ups of Downs, Tri-State Down Syndrome Support Group

GiGi’s Playhouse Cleveland
Lakewood, OH
Phone: 216-529-3333
Email: cleveland@gigisplayhouse.org
Website: www.gigisplayhouse.org/cleveland
Facebook: @gigisplaygousecleveland

OKLAHOMA

Down Syndrome Association of Central Oklahoma
Oklahoma City, OK
Phone: 405-463-5641
Email: info@dsaco.org
Website: www.dsaco.org
Facebook:@DSACentralOklahoma

Down Syndrome Association of Tulsa, Inc.
Tulsa, OK
Phone: 918-804-3728
Email: info@dsat.org
Website: www.dsat.org
Facebook:@downsyndromeassociationoftulsa

OREGON

Down Syndrome Association of Southern Oregon
Ashland, OR
Phone: 541-776-9805
Email: mail@dsaso.org
Website: www.dsaso.org
Facebook:@inclusionworksoregon

 

Willamette Valley Down Syndrome Association
Salem, OR
Phone:503-798-5864
Email: info@wvdsa.org
Website:www.wvdsa.org
Facebook:Willamette Valley Down Syndrome Association

PENNSYLVANIA

Delaware County Down Syndrome Interest Group
Springfield, PA
Phone: 610-544-4025
Email: DELCODSIG@yahoo.com
Website: www.delcodsig.org

Centre County Down Syndrome Society
State College, PA
Phone: 814-235-1981
Email: ccdssociety@gmail.com
Website: www.centrecountydownsyndrome.org
Facebook:Centre Region Down Syndrome Society

Down Syndrome Group of Erie County
Erie, PA
Phone: 814-833-2143
Email: downsynerie@yahoo.com
Website: www.downsyndromeerie.org
Facebook:@downsyndromeerie

Chester Co. Down Syndrome Interest Group
Exton, PA
Phone: 610-889-0291
Email: ccdsig@ccdsig.org
Website: www.ccdsig.org
Facebook:@CCDSIG

Down Syndrome Association of Pittsburgh
Pittsburgh, PA
Phone: (412) 565-9936
Email: info@dsapgh.org
Website: www.dsapgh.org
Facebook:@dsapgh

Bucks County Down Syndrome Interest Group
Kintnersville, PA
Phone: 215-766-0890
Email: dgsantoro@gmail.com
Website: www.bcdsig.org

Lancaster Down Syndrome Advocates
Lancaster, PA
Phone: 717 478-8537
Email: contact@lancasterdsa.or
Website: www.lancasterdsa.org
Facebook:@BCDSIG

Montgomery County Down Syndrome Interest Group of PA
Blue Bell, PA
Phone:
Email: info@mcdsig.org
Website: www.mcdsig.org
Facebook: Montgomery County Down Syndrome Interest Group of PA (MCDSIG)

Eastern Pennsylvania Down Syndrome Center
Trexlertown, PA
Phone: 610-402-0184
Website: www.epdsc.net
Facebook:@EasternPADownSyndromeCenter

Central PA Down Syndrome Awareness Group
Carlisle, PA
Phone:717-218-0242
Email:info@cpadsa.org
Website:www.cpadsag.org
Facebook:Central PA Down Syndrome Awareness Group

Hopes and Dreams Foundation
Southampton, PA
Phone:215-264-2859
Email:info@hopesanddreamsfoundation.org
Website:www.hopesanddreamsfoundation.org

3.21 For Life
Hummelstown, PA
Email:hello@321forlife.com
Website:www.321forlife.com
Facebook:@321forlifepa

Trisomy 21 Parent Program
Philadelphia, PA
Phone: 267-426-5283
Website:https://www.chop.edu/health-resources/trisomy-21-parent-peer-program.org

PUERTO RICO

Mis Amigos De Sindrome de Down, Inc.
Carolina, PR
Phone: 787-791-3249
Email: yolanda@masdpr.net
Website: www.masdpr.net

Madres Innovadoras de Personas con sindrome de Down
Las Piedras, PR
Phone: 787-312-5574
Email: madresinnovadoras@gmail.com
Website: www.madresinnovadoras.blogspot.com

Fundación Puertorriqueña Síndrome Down
San Juan, PR
Phone: 787-283-8210
Email: fpsd@coqui.net
Website: www.sindromedown.org

RHODE ISLAND

Down Syndrome Society of Rhode Island
Cranston, RI
Phone: 401-463-5751
Email: coordinator@dssri.org
Website: www.dssri.org
Facebook:@DSSRhodeIsland

SOUTH CAROLINA

Family Connections of South Carolina
1800 St. Julian Place, Suite 104
Columbia, SC
Phone: 800-578-8750 Spanish: 888-808-7462
Email: info@familyconnections.org
Website: www.familyconnections.org

Upside of Downs of Aiken
Aiken, SC
Email: info@aikenupsidedowns.org
Website: www.aikenupsidedowns.org
Facebook:Upside of Downs of Aiken

Down Syndrome Association of Lowcountry
Mt. Pleasant, SC
Phone: 843-553-3725
Email: dsalowcountry@gmail.com
Website: www.dsalowcountry.org

The Grand Strand Down Syndrome Society
Myrtle Beach, SC
Phone: 843-283-0890
Email: grandstranddss@hotmail.com
Website: www.grandstrandds.org
Facebook:@dsalowcountry

SOUTH DAKOTA

New Directions Down Syndrome Association
Sioux Falls, SD
Phone: 605-610-8026
Email: info@newdirectionsdsa.com
Website: www.newdirectionsdsa.com
Facebook:@NewDirectionsDownSyndromeAssociation

Ups of Downs Family Support Group
Rapid City, SD
Phone:605-348-1358 or 605-877-1190
Email: upsofdownsblackhills1@gmail.com
Website: www.upsofdowns.org
Facebook: @upsofdowns

TENNESSEE

Chattanooga Down Syndrome Society
Chattanooga, TN
Email: info@chattanoogadownsyndrome. org
Website: www.chattanoogadownsyndrome.org
Facebook:@ChattanoogaDSS

Down Syndrome Awareness Group of East Tennessee
Knoxville, TN
Phone: 865-202-8867
Email: info@dsagtn.org
Website: www.dsagtn.org
Facebook:@dsagtn

Down Syndrome Association of Memphis and the Mid-South
Memphis, TN
Phone: 901-547-7588
Email: director@dsamemphis.org
Website: www.dsamemphis.org
Facebook:@DSAMemphis

Down Syndrome Association of Middle Tennessee
Nashville, TN
Phone: 615-386-9002
Email: alecia@somethingextra.org
Website: www.somethingextra.org
Facebook:@dsamt

F.R.I.E.N.D.S.
Johnson City, TN
Phone: 423-946-3734
Email: admin@dsfriends.net
Website: www.dsfriends.net
Facebook:@FRIENDS.TriCities

TEXAS

Panhandle Down Syndrome Guild
Amarillo, TX
Email: panhandledsg@yahoo.com
Website: www.panhandledsg.net
Facebook:@panhandledsg

Down Syndrome Association of Central Texas
Austin, TX
Phone: 512-323-0808
Email: admin@dsact.org
Website: www.dsact.org
Facebook:@DSACT

Down Syndrome Association of Brazos Valley
College Station, TX
Phone: 979-778-7010
Email: dsabv@yahoo.com
Website: www.dsabv.org
Facebook:@DownSyndromeAssociationBrazosValley

Down Syndrome Coalition for El Paso (DSCEP)
El Paso, TX
Phone: 915-241-1040
Email: info@dscep.org
Website: www.dscep.org
Facebook:@DSC4ElPaso

Down Syndrome Partnership of North Texas
Fort Worth, TX
Phone: 817-390-2970
Email: info@dspnt.org
Website: www.dspnt.org
Facebook:@dspnt

East Texas Down Syndrome Group
Longview, TX
Phone: 903-757-3516
Email: etdsgdirector@gmail.com
Website: www.etdsg.org
Facebook:@etdownsyndromegroup

Down Syndrome Guild of Dallas
Richardson, TX
Phone: 214-267-1374
Email: info@downsyndromedallas.org
Website: www.downsyndromedallas.org
Facebook:@DSGDallas

Friends of Down Syndrome
Houston, TX
Phone: 281-989-0345
Email: president@friendsofdownsyndrome.org
Website: www.friendsofdownsyndrome.org
Facebook:@friendsofdownsyndrome

Down By the Border
Brownsville, TX
Phone: 956-544-7727
Email: sergio@downbytheborder.com
Website: www.downbytheborder.org
Facebook:@dbtborder

Rio Grande Valley Down Syndrome Association
Edinburg, TX
Phone: 956-314-0821
Email: info@rgvdsa.org
Website: www.rgvdsa.org
Facebook:@rgvdsa

Down Syndrome Association of Houston
Houston, TX
Phone: 713-682-7237
Email: executivedirector@dsah.org
Website: www.dsah.org
Facebook:@DSAHouston

BUDS – Better Understanding of Down Syndrome
Lubbock, TX
Email: llowe@budsonline.net

Red River Valley Down Syndrome Society
Paris, TX
Phone: 903-783-1922
Email: info@rrvdss.org
Website: www.redriverdss.org
Facebook:@redriverdss

Down Syndrome Association of South Texas
San Antonio, TX
Phone: 210-349-4372
Email: info@dsastx.org
Website: www.dsastx.org
Facebook:@DSASTX

Galveston-Houston Families Exploring Down Syndrome
Houston, TX
Phone:281-736-8008
Email:admin@ghfeds.org
Website:www.ghfeds.org
Facebook:@GalvestonHoustonFamiliesExploringDownSyndrome

Heart of Texas Down Syndrome Network
Waco, TX
Phone:254-230-9782
Email:support@hotdsn.org
Website:www.hotdsn.org

UTAH

Utah Down Syndrome Foundation
Salt Lake City, UT
Phone: 801-446-1994
Email: info@udsf.org
Website: www.udsf.org
Facebook:@udsf.org

VERMONT

Champlain Valley Down Syndrome Group
Burlington, VT
Phone: 802-922-0428
Email: info@cvdsg.org
Website: www.cvdsg.org
Facebook:@ChamplainValleyDownSyndromeGroup

VIRGINIA

Virginia Down Syndrome Association
Richmond, VA
Phone: 804-447-4713
Email: info@virginiadsa.org
Website: www.virginiadsa.org
Facebook:@downsyndromeva

Down Syndrome Association of Roanoke
Roanoke, VA
Phone:540-772-6460
Website:www.dsar.org

Down Syndrome Association of Northern Virginia
Oakton, VA
Phone: 703-621-7129
Email: heathert@dsanv.org
Website: www.dsanv.org
Facebook:@DownSyndromeAssociationOfNorthernVirginiaDSANV

Down Syndrome Association of Hampton Roads
Norfolk, VA
Phone: 757-466-3696
Email: office@dsahr.org
Website: www.dsahr.org
Facebook:@dsahr.org

Down Syndrome Association of Virginia Peninsula
Yorktown, VA
Phone: 757-890-3013
Email: dsavp21@yahoo.com
Facebook: Down Syndrome Association of Virginia Peninsula

WASHINGTON

Down Syndrome Community
Seattle, WA
Phone: 206-431-9777
Email: info@downsyndromecommunity.org
Website: www.downsyndromecommunity.org
Facebook:@DScommunity

Down Syndrome of Snohomish County
Snohomish County, WA
Phone: 425-263-1039
Email: info@dsasc.org
Website: www.dsasc.org

WEST VIRGINIA

Down Syndrome Network of West Virginia
Cross Lanes, WV
Phone: (304) 545-6613
Email: dsnwvinfo@gmail.com
Website: www.dsnwv.org
Facebook:@dsnwv

WISCONSIN

Wisconsin Upside Down
Hartland, WI
Phone: 262-443-8690
Email: info@wiusd.org
Website: www.wiusd.org
Facebook:@WIUSD

Down Syndrome Association of Wisconsin, Inc.
Milwaukee, WI
(communities also supported include: Central WI, Chippewa Valley, Fox Cities, Green Bay, Kenosha/Racine/Walworth, La Crosse, South Central WI, Milwaukee, Sheboygan, St Croix River Valley
Phone: 414-327-3729
Email: info@dsaw.org
Website: www.dsaw.org
Facebook:@dsawisconsin

Down Syndrome Association of Wisconsin – Fox Cities
Appleton, WI
Phone: 920-418-5533
Email: info@dsawfoxcities.org
Website: www.dsawfoxcities.org
Facebook:@DSAWFC

Down Syndrome Association of Wisconsin – Madison
Madison, WI
Email:southcentral@dsaw.org
Website:www.dsaw.org/southcentral/
Facebook:@dsawchip

Down Syndrome Association of Wisconsin-Green Bay
Green Bay, WI
Phone:920-703-8784
Email:infogreenbay@dsaw.org
Facebook:@DSAWGB

Down Syndrome Association of Wisconsin-Chippewa 
West Allis, WI
Phone:715-379-0563
Email:info@dsawchippewavalley.org
Website:www.dsawchippewavalley.org
Facebook:@dsawchip

WYOMING

Wyoming Down Syndrome Association
Laramie, WY
Phone: 307-742-6641
Website: www.wydsa.org
Facebook:@WyDSA

AUSTRALIA

Down Syndrome NSW
New South Wales, Australia
Email: library@dsansw.org.au

BULGARIA

Up with Down Foundation
Bulgaria
Phone: 359-876-7754
Email: upwithdownbg@gmail.com
Website:www.upwithdown.org
Facebook:@upwithdownbg

CHILE

Complementa
Chile
Email: contacto@complementa.cl
Website:www.complementa.cl
Facebook:@fundacioncojmplementa

Creer Para Incluir
Chile
Email: contactocreerparaincluir@gmail.com
Facebook:@creerparaincluir

NIGERIA

Down Syndrome Foundation of Nigeria
Lagos, Nigeria
Phone: 234-803-228-5545
Website: www.dsanigeria.org

ONTARIO, CANADA

Down Syndrome Association of Toronto
Toronto Ontario, ON
Phone: 416-966-0990
Email: info@dsat.ca
Website: www.dsat.ca

Canadian Down Syndrome Society
Collingwood, ON
Phone: 800-883-5608
Website: https://cdss.ca/

TRINIDAD AND TOBAGO

Down Syndrome Family Network
Valsayn, Trinidad, and Tobago
Phone: 868-663-0865
Email: dsfamilynetwork@gmail.com
Website: www.dsfamilynetwork.org