Mission Moment

BIG NDSC NEWS!

We are thrilled to announce that Down Syndrome Affiliates in Action (DSAIA) is merging into the operations of the National Down Syndrome Congress (NDSC). While both organizations have been deeply committed to improving the lives of individuals with Down syndrome and their families, our approaches are different, but complementary. NDSC focuses on empowering families by providing information, advocacy, and support throughout every stage of life, from diagnosis through adulthood.  DSAIA, on the other hand, has focused on empowering Down syndrome organizations by equipping them with the resources, networks, and best practices they need to serve their local communities effectively.  Together, these missions overlap in a shared goal of enhancing the well-being of people with Down syndrome. 

The merger will offer significant benefits to both DSAIA and NDSC. For DSAIA, by integrating their efforts with NDSC, a new staff person will be hired who will be dedicated solely to membership growth and addressing the needs of Down syndrome associations across the country. This individual will have access to an established infrastructure, allowing them to focus on what truly matters: supporting DSAIA members. For NDSC, the merger will provide access to DSAIA’s network of 80+ member organizations, significantly expanding NDSC’s reach and influence within the Down syndrome community. This expanded network will re-energize an NDSC affiliate model, allowing for more direct and meaningful engagement with Down syndrome organizations nationwide.

To learn more about the merger, you can read a joint statement from the NDSC Executive Director, Jim Hudson, and the DSAIA Board President, Christina Reaves.

Christina’s Letter Jim’s Letter

NDSC’s Mission Moment – October 2018

with Executive Director David Tolleson

The month of October was designated as Down syndrome Awareness Month in 1984 by President Ronald Reagan.  We’ve seen a lot of changes since then – the average life expectancy of individuals with Down syndrome growing from 25 to 60; inclusive education practices increasing; and self-advocates living independently and working in their communities.  Many families use October as a time to bring awareness to their classrooms and communities.  At the NDSC we promote Down syndrome awareness every day!

 The mission of the National Down Syndrome Congress is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.

Many people view the NDSC as “the convention people”, and it’s true, we have an amazing annual convention – the largest of its kind in the world.  However, we also have a staff and board with a vast knowledge base, as well as a Professional Advisory Council that we turn to when we need special expertise.  Whether you are a parent experiencing a diagnosis or wishing to make a difference on legislative policy; an adult sibling who has questions regarding guardianship and alternatives; or, a self-advocate wanting to discuss life options – we are here to help you every step of the way.  We have a robust website and offer parent webinars and other resources.  We provide support and materials to affiliate organizations and medical professionals, so they can help spread awareness and provide accurate and up-to-date information.  We are the oldest national Down syndrome organization in the country, well known for reaching out to others and for helping anyone – member or not – because it’s the right thing to do, every month of every year.