Local and National Support Networks
Who can I look to for help and support?
The NDSC has connections to a wide-reaching network of local, regional, and national organizations serving people with Down syndrome and their families. Throughout history, this network has supported each other, learning and growing together into a dynamic community. As a member of our community, we offer our in-depth knowledge and support to you.
For parents and family members of individuals with Down syndrome, local organizations play a critical role in offering support, information and resources to the families and individuals with Down syndrome. They offer on-the-ground support to a diverse population in all corners of the United States.
Because these organizations are so valuable, we urge you to search our Affiliate Directory for a local Down syndrome organization closest to you to learn more and become involved. Please take a look at the organizations that partner with the NDSC on various projects and initiatives each year.
To request changes to contact information below please submit the updates at www.ndsccenter.org/dsa-directory-update.
The Global Down Syndrome Foundation (GLOBAL)
GLOBAL is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education, and advocacy.
3239 E. 2nd Avenue
Denver, CO 80206
Phone: 303-321-6277
Email: info@globaldownsyndrome.org
Website: www.globaldownsyndrome.o rg
Facebook: @GDSFoundation
Down Syndrome Affiliates in Action (DSAIA)
DSAIA is a trade organization that works to support and advance the growth and service capabilities of its member local and regional Down syndrome organizations. It serves to be the conduit of value-driven training, programs, best practices, and support for its members.
PO Box 2122
Bismarck, ND 58502
Phone: 701-425-7129
Email: info@dsaia.org
Website: www.dsaia.org
Facebook:@downsyndromeaia
Down Syndrome Diagnosis Network (DSDN)
Supports parents who have recently received a diagnosis for their child or unborn baby by connecting them to other families touched by Down syndrome. Join one of their many private rockin’ mom ™ and dad online groups for new and expectant parents.
PO Box 140
Stillwater, MN 55082
Phone: (612)460-0765
Email: info@dsdiagnosisnetwork.org
Website: www.dsdiagnosisnetwork.org
Facebook: @DownSyndromeDiagnosisNetwork
The International Mosaic Down Syndrome Association (IMDSA)
IMDSA provides support, information, and research to any family, individual, or professional whose life has been affected by mosaic Down syndrome.
PO Box 354
Trenton, OH 45067
Phone: 888-MDS-LINK (888-637-5465)
Website: www.imdsa.org
Facebook: @IMDSA
LuMind IDSC Down Syndrome Foundation
LuMind IDSC accelerates research to increase the availability of therapeutic, diagnostic, and medical care options and empowers families through education, connections, and support.
20 Mall Road, Suite 200
Burlington, MA 01803-4126
Phone: 781-825-1300
Email: LuMindIDSC@LuMindIDSC.org
Website: LuMind IDSC
Facebook: @LuMindlDSC
The National Down Syndrome Adoption Network (NDSAN)
NDSAN is a nonprofit program that offers support and information to parents whose child has received a diagnosis of Down syndrome and may be considering an adoption plan. They provide a listening ear and information and keep a registry of families from all over the United States who are interested in adopting a child with Down syndrome within the US. NDSAN is a nonprofit program and charges no fees for its services.
c/o DSAGC
644 Linn Street, Suite 1128
Cincinnati, OH 45203
Birth Parent Line: 513-213-9615
Adoptive Parent Line: 513-709-1751
Website: www.ndsan.org
Facebook: @dsadoption
The National Down Syndrome Society (NDSS)
NDSS is a national advocate for the value, acceptance and inclusion of people with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.
666 Broadway
New York, NY 10012
Phone: 800-221-4602
Email: info@ndss.org
Website: www.ndss.org
Facebook: @NDSS1979
NADS – National Association for Down Syndrome
NADS is the oldest organization in the country serving individuals with Down syndrome and their families. It was founded in Chicago in 1961 by parents who chose to go against medical advice and raised their children with Down syndrome at home. Their pioneering efforts have made it easier for later generations of individuals with Down syndrome to be accepted by their families and communities, to develop their capabilities, and to work towards independence.
Park Ridge, IL
Phone: 630-325-9112
Email: info@nads.org
Website: www.nads.org
Facebook:@NadsFan
Dads Appreciating Down Syndrome (D.A.D.S.)
To assist and support, through fellowship and action, the fathers and families of individuals with Down syndrome.
Indianapolis, IN
Phone: 317-523-5888
Email: john.goodrich@dadsnational.org
Website: www.dadsnational.org
Facebook:D.A.D.S. National (Dads Appreciating Down Syndrome)
Down Syndrome Alabama
Birmingham, AL
Phone: 205-988-0810
Email: downsyndromealabama@gmail.com
Website: www.downsyndromealabama.org
Facebook: @dsacares
FRIENDS
Dothan, AL
Phone: 334-726-2075
Email: hadkins5@gmail.com
Website: www.DownSyndromeFRIENDS
Coastal Alabama Down Syndrome Society
Mobile, AL
Phone: 888-454-0317
Email: downsyndromesociety@gmail.com
Website: www.dssmobile.org
Facebook: @dssmobile
Bringing Up Down Syndrome BUDS
Madison, AL
Phone: 214-729-6606
Email: BUDS@budsonline
Website: www.budsonline.org
Facebook:@bringingupdownsyndrome
Montgomery Area Down Syndrome Outreach Group
Montgomery, AL
Email: montgomeryareadownsyndrome@gmail.com
Website: www.montgomeryareadownsyndrome.com
Facebook:@MADSOGPublic
The Arc of Shelby County
Pelham, AL
Phone:205-664-9313
Email:kstokes@thearcofshelby.org
Website:www.thearcofshelby.org
Facebook:@thearcofshelbyco
Miracle Mullen Downs Foundation
Birmingham, Alabama
Phone:205-283-4015
Email:mmdownsfoundation@yahoo.com
Website:www.facebook.com/MiracleMullenDownsFoundation
Facebook:@MiracleMullenDownsFoundation
Alaska Down Syndrome Network
Anchorage, AK
Phone: 907-667-6677
Website: www.akdownsyndrome.org
Facebook: @AKNDSC
Sharing Down Syndrome Arizona! Inc
Gilbert, AZ
Phone: 480-926-6500
Email: gina@sharingds.org
Website: www.sharingds.org
Facebook:@SharingDownSyndromeAZ
Down Syndrome Network AZ
Phoenix, AZ
Phone: 480-759-9150
Email: info@dsnetworkaz.org
Website: www.dsnetworkaz.org
Facebook:@DSNetworkAZ
Southern Arizona Network for Down Syndrome
Tucson, AZ
Phone: 520-312-2030
Email: info@sandsaz.org
Website: www.sandsaz.org
Facebook:@southernarizonanetworkfordownsyndrome
Leti Foundation
Tempe, AZ
Phone:480-567-6148
Email:tgpalma@icloud.com
Website:www.letifoundation.com
Gigi’s Phoenix, AZ
Phoenix, AZ
Phone:(480) 451-PLAY (7529)
Email:phoenix@gigisplayhouse.org
Website:gigisplayhouse.org/phoenix/
Facebook:@GigisPlayhousePhoenix
Arkansas Down Syndrome Association
Little Rock, AR
Phone: 501-223-3696
Email: contact@ardownsyndrome.org
Website: www.ardownsyndrome.org
Facebook:@ardownsyndromeassociation
Down Syndrome Connection of Northwest Arkansas
Springdale, AR
Phone:479-644-9208
Email: jennifermcwhorter@dscnwa.com
Website: www.dscnwa.com
Facebook:@DSCNWA
Disability Rights Arkansas
Little Rock, AR
Phone:501-269-1775
Email:info@disabilityrightsar.org
Website:www.disabilityrightsar.org
Facebook:@DisabilityRightsAR
Arkansas Down Syndrome Network
Little Rock, AR
Email:ardsnetwork@gmail.com
Website:https://www.facebook.com/groups/1056050221178935
Facebook:@arkansasdownsyndromenetwork
GiGi’s Playhouse Little Rock
Little Rock, AR
Phone:(501) 246-5654
Email:littlerock@gigisplayhouse.org
Website:gigisplayhouse.org/littlerock/
Facebook:@gigisplayhouselittlerock
Down Syndrome Association of Orange County
Costa Mesa, CA
Phone: 714-540-5794
Email: info@dsaoc.org
Website: www.dsaoc.org
Facebook:@DSAOC
Down Syndrome Connection of the Bay Area
Danville, CA
Phone: 925-362-8660
Email: info@dscba.org
Website: DSCBA.org
Facebook:@DSCBA
Club 21
Pasadena, CA
Phone: 626-844-1821
Email: info@clubtwentyone.org
Website: www.clubtwentyone.org
Facebook:@club21happiness
Down Syndrome Information Alliance
Sacramento, CA
Phone: 916-658-1686
Email: info@downsyndromeinfo.org
Website: www.downsyndromeinfo.org
Facebook:@DSIA21
Down Syndrome Association of Central California
Fresno, CA
Phone: 559-228-0411
Email: info@dsacc.org
Website: www.dsacc.org
Brighter Side of Down Syndrome
Stockton, CA
Phone:209-910-4231
Email: info@tbods.org
Website: twos.org
Down Syndrome Association North Bay
Santa Rosa, CA
Phone: 707-537-8001
Email: dihobaugh@sbcglobal.net
Website: www.dsanb.org
Facebook:@DSANB
Inland Valley Down Syndrome Association
Rancho Cucamonga, CA
Phone: 833-483-7221
Email: info@ivdsa.org
Website: www.ivdsa.org
Facebook:@DSACC
Tulips and Triumphs
Newbury Park, CA
Email: jjmcjloper@verizon.net
Down Syndrome Foundation of Orange County
Newport Beach, CA
Phone: 949-757-1177
Email: info@dsfoc.org
Website: www.dsfoc.org
Facebook:@downsyndromefoundation
Down Syndrome Association of San Diego
San Diego, CA
Phone: 619-594-7389
Website: www.dsasdonline.org
Facebook: Down Syndrome Association of San Diego
DS Action
San Diego, CA
Phone: 619-694-4615
Email: sharla.hank@dsaction.com
Website: www.dsaction.com
Facebook:@dsaction
Silicon Valley Down Syndrome Network
San Jose, CA
Phone: 408-771-4796
Email: info@svdsn.com
Website: www.svdsn.org
Facebook:@svdsn
Down Syndrome Special Needs Network
Santa Maria, CA
Phone: 805-937-9458
Email: hofflouise@aol.com
The Arc Solano /Solano Parents United for Down Syndrome
Vallejo, CA
Phone: 707-552-2935
Email: arcgforcier@email.com
Website: www.thearcsolano.org
Facebook:@TheArcSolano
Down Syndrome Association of Los Angeles
Van Nuys, CA
Phone: 818-786-0001
Email: info@dsala.org
Website: www.dsala.org
Facebook:@DownSyndromeAssociationLA
BUDS of the Redwoods
Eureka, CA
Email:NCBWalk@gmail.com
Website:www.budsoftheredwoods.com
Facebook:@BudsOfTheRedwoods
Parents Helping Parents
San Jose, CA
Phone:408-727-5775
Email:info@php.com
Website:www.php.com
Facebook:@ParentsHelpingParentsSanJose
Kern Down Syndrome Network
Bakersfield, CA
Phone:661-234-8006
Email:info@kerndsn.org
Website:www.kerndsn.org
Facebook:@kerndsn
Special Parents Information Network (SPIN)
Santa Cruz, CA
Phone:831-722-2800
Email:info@spinsc.org
Website:www.spinsc.org
Facebook:SPIN – Special Parent Information Network
California Down Syndrome Advocacy Coalition
Email:cadsadvocacy@gmail.com
Website:https://cdacblog.wordpress.com/
Facebook:@CADsAdvocacy
San Diego Down Syndrome Playgroup
San Diego, CA
Email: sddsplaygroup@gmail.com
Website: https://sddsplaygroup.com
You Are Awesome
Los Angeles, CA
Email:fanfan.w.yaa@gmail.com
Colorado Springs Down Syndrome Association
Colorado Springs, CO
Phone: 719-633-1133
Email: info@csdsa.org
Website: www.csdsa.org
Facebook:@CSDSA.org
Rocky Mountain Down Syndrome Association
Denver, CO
Phone: 303-797-1699
Email: info@rmdsa.org
Website: www.rmdsa.org
Facebook:@rmdsa21
Down Syndrome Association of Connecticut
New Britain, CT
Phone: 888-486-8537
Email: info@mydsact.org
Website: www.mydsact.org
Facebook:@mydsact
Lighthouse Voc-Ed Center
New London, CT
Phone:860-445-7626
Email:info@lvecenter.com
Website:lhcampus.com
Facebook:@lighthousevocedcenter
Down Syndrome Association of Delaware
Middletown, DE
Phone: 302-995-1004
Email:info@dsadelaware.org
Website: www.dsadelaware.org
Facebook:@DSAofDelaware
Gold Coast Down Syndrome Organization
Boynton Beach, FL
Phone: 561-752-3383
Email: gcdso@bellsouth.net
Website: www.Goldcoastdownsyndrome.org
Facebook:Gold Coast Down Syndrome Organization
Down Syndrome Association of Jacksonville
Jacksonville, FL
Phone: 904-353-6300
Email: dsaj@bellsouth.net
Website: www.dsaj.org
Facebook:@dsajacksonville
Down Syndrome Association of Central Florida
Orlando, FL
Phone: 407-478-5621
Email: info@dsacf.org
Website: www.dsacf.org
Facebook:@DSACF
Fun Coast Down Syndrome Association
Palm Coast, FL
Phone: 386-447-8034
Email: funcoastdown@bellsouth.net
Website: www.funcoastdownsyndrome.com
Facebook:@funcoastdown
Down Syndrome Association of Brevard
Merritt Island, FL
Phone 321-576-3296
Email: info@dsabrevard.org
Website: www.dsabrevard.org
Facebook:@DSABrevard
21 & Change, Inc.
Riverview, FL
Phone: 910-273-7049
Email: info@21andchange.org
Website: www.21andchange.org
Facebook:@21andChange
Manasota BUDS
Bradenton, FL
Phone: 941-907-0499
Email: info@manasotabuds.org
Website: www.manasotabuds.org
Facebook:@ManasotaBUDS
F.R.I.E.N.D.S. Support
Brandon, FL
Phone: 813-245-2782
Email: info@friendssupport.org
Website: www.friendssupport.org
Facebook:@FRIENDSDownSyndromeWestFlorida
Treasure Coast Down Syndrome Awareness Group
Hobe Sound, FL
Phone: 772-546-7057
Email: sacs01@bellsouth.net
Website: www.tcdownsyndromeag.org
Facebook:@tcdsag
Down Syndrome Foundation of Florida
Orlando, FL
Phone: 407-760-9395
Email: camille.gardiner@dsfflorida.org
Website: www.dsfflorida.org
Facebook:@DSFFlorida
Broward Gold Coast Down Syndrome Organization
Sunrise, FL
Phone: 954-577-4122
Email: ddebraga@bgcdownsyndrome.org
Website: www.bgcdownsyndrome.org
Facebook:@BachTodaroSupportDownsyndrome
Down Syndrome Association of Miami
Miami, Flordia
Phone:305-218-8233
Email:info@dsaom.org
Facebook:@DownSyndromeMiami
Down Syndrome Association of Northwest Flordia
Tallahassee, FL
Phone:850-476-3724
Email:momsunshine03@bellsouth.net
Down Syndrome Association of Tallahassee
Tallahassee, FL
Phone:850-298-8187 ext.74370
Email:excutivedirector@dstallahassee.com
Website:www.dsatallahassee.com
Facebook:@DSATallahassee
Down Syndrome Foundation of Flordia
Orlando, FL
Phone:407-484-4273
Email:info@dsfflordia.org
Website:www.dsfflordia.org
Facebook:@DSFFlorida
Families Exploring Down Syndrome- Brevard
Cocoa Beach, FL
Phone:321-480-4796
Email:info@fedsofbrevard.org
Website:www.fedsofbrevard.org
Facebook:@BrevardBuddyWalk
Flordia Keys Down Syndrome Educational Trust
Key Largo, FL
Phone:305-942-3967
Email:contactus@fkdset.org
Website:www.fkdset.org
Facebook:@fkdset
Down Syndrome Association of Atlanta
Atlanta, GA
Phone: 404-320-3233
Email: info@dsaatl.org
Website: www.dsaatl.org
Facebook:@DSAAtlanta
Down Syndrome Association of South Georgia
Valdosta, GA
Phone:(229) 412-4311
Email:info@dsasouthga.org
Website:www.dsasouthga.org
Facebook: Down Syndrome Association of South Georgia
Lowcountry Down Syndrome Society
Savannah, GA
Phone:912-436-3626
Email:info@ldssga.org
Website:www.ldssga.org
Facebook:@ldssga
Down Syndrome Association of Middle Georgia
Macon, GA
Email:zachary.kennedy@dsmag.org
Website:www.dsamg.org
Facebook: DSAMG321
Upside of Downs
Augusta, GA
Phone: 706-799-5347
Email: kkstrite@gmail.com
Facebook: Upside of Downs-Augusta, GA
Down Syndrome West Georgia Inc.
Franklin, GA
Email:downsyndromewestga@gmail.com
Website:www.facebook.com/pg/Downsyndromewetgabuddywalk
Facebook:@Downsyndromewetgabuddywalk
Down With Finn
Macon,GA
Phone: 478-258-3087
Email: downwithfinn@gmail.com
Facebook:@Down With Finn
Down Syndrome ‘Ohana of Hawaii
Honolulu, HI
Phone: 808-843-2502
Email: ds_ohana@yahoo.com
Website: www.dsohawaii.com
Facebook:Down Syndrome ‘Ohana of Hawaii
Big Island Down Syndrome ‘Ohana
Hilo, HI
Phone: 808-209-7131
Email: meriah@meriahnichols.com
Website: www.dsohawaii.com
Facebook:Down Syndrome ‘Ohana of Hawaii
Down Syndrome Connections NW
Hayden, ID
Phone: 208-755-5079
Email: info@dsconnections.com
Website: www.dsconnections.com
Facebook:@Dsconnectionsnw
Treasure Valley Down Syndrome Association
Meridian, ID
Phone: 208-378-9912
Email: president@idahodownsyndrome.org
Website: www.idahodownsyndrome.org
Facebook:@TVDSA
Eastern Idaho Down Syndrome Family Connect
Idaho Falls, ID
Phone:208-716-6504
Email:info@easternidahodownsyndrome.org
Website:www.easternidahodownsyndrome.org
Facebook:@eastidahodownsyndrome
Southeast Idaho Down Syndrome Support Group
Boise, ID
Phone:208-317-6211
Website:www.seidahobuddywalk.com
Facebook:@eastidahodownsyndrome
Heart of Illinois Down Syndrome Association
Morton, IL
Phone: 309-712-4852
Email: info@hoidsa.org
Website: www.hoidsa.org
Facebook:@HOIDSA
Central IL Down Syndrome Organization
Normal, IL
Phone: 309-452-3264
Email: cidsobusiness@gmail.com
Website: www.cidso.org
Facebook:@CIDSO.org
Gigi’s Playhouse
Hoffman Estates, IL
Phone: 847-885-7529
Email: info@gigisplayhouse.org
Website: www.gigisplayhouse.org
Facebook:@gigisplayhousehoffmanestates
Gigi’s Playhouse McHenry County
McHenry, IL
Phone: 815-385-7529
Email: mchenry@gigisplayhouse.org
Website: www.gigisplayhouse.org/mchenry
Facebook:@gigismchenryCo
Champaign County Down Syndrome Network
Champaign, IL
Phone: 217-351-4163
Email: info@champaigndsn.org
Website: www.champaigndsn.org
Facebook:CCDSN
Livingston Area Down Syndrome Society
Chatsworth, IL
Phone: 815-689-2202
Email: info@ladss.org
Riverbend Down Syndrome Association
Glen Carbon, IL
Phone: 618-667-8771
Email: secretary@riverbendds.org
Website: www.riverbendds.org
Facebook:@riverbendds
UPS for DownS
Schaumburg, IL
Phone: 847-895-2100
Email: info@upsfordowns.org
Website: www.upsfordowns.org
Facebook:@upsfordowns
Lincoln Land Down Syndrome Society
Springfield, IL
Phone: 217-741-1832
Email: jason.schnepp@gmail.com
Website: www.lldss.org
Facebook:@LincolnLandDownSyndromeSociety
NADS – National Association for Down Syndrome
Park Ridge, IL
Phone: 630-325-9112
Email: info@nads.org
Website: www.nads.org
Facebook:@NadsFan
Celebrate Differences
Oswego, IL
Phone:630-885-3006
Email:info@celebratedifferences.org
Website:www.celerbratedifferences.org
Facebook: Celebrate Differences
Supporting Illinois Brothers and Sisters
Schaumburt, IL
Phone:708-989-3619
Email:info@sibsnetwork.org
Website:www.sibsnetwork.org
Facebook: @sibsnetwork
Down Syndrome Support
New Lenox, IL
Phone:815-272-1068
Email:info@dssupport.net
Website:www.dssupport.net
Facebook:@ChicagolandBuddyWalk
Family Ideas Network for Down Syndrome
Crystal Lake, IL
Phone:815-575-9864
Email:onepercent2@gmail.com
Website:www.findsdownsyndrome.com
Facebook: Family Ideas Network for Down Syndrome (FINDS)
Kankakee Area Down Syndrome Society
Chicago, IL
Phone:815-210-8944
Email:info@kadss.org
Facebook: Kankakee Area Down Syndrome Society
Lilly’s Playground Foundation
Wadsworth, IL
Phone:815-210-8944
Email:mpotosina@gmail.com
Website:www.lillysplayground.org
Facebook: @lillysplayground
Down Syndrome Indiana
Indianapolis, IN
Phone: 317-925-7617
Email: info@dsindiana.org
Website: www.dsindiana.org
Facebook:@DownSyndromeIndiana
Down Syndrome Association of Northeast Indiana
Ft. Wayne, IN
Phone: 260-471-9964
Email: dsani4u@aol.com
Website: www.dsani.org
Facebook:@dsanortheastindiana
Down Syndrome Family Connection
Bloomington, IN
Phone: 812-720-9603
Email: Cyndi@downsyndromefamilyconnection.org
Website: www.downsyndromefamilyconnection.org
Facebook:@DownSyndromeFamilyConnection
Down Syndrome Association of Central Indiana
Carmel, IN
Phone: 317-574-9757
Email: MKaye62801@aol.com
Elkhart Co. Down Syndrome Support Group
Goshen, IN
Phone: 574-534-3931
Email: ecdssg@mac.com
Website: www.ecdssg.org
Facebook: Elkhart County Down Syndrome Support Group
Michiana Down Syndrome
Granger, IN
Phone: 574-334-7734
Email: info@michianadownsyndrome.org
Website: www.michianadownsyndrome.org
Facebook:@MichianaDownSyndromeFamilySupportAdvocacyGroup
Down Syndrome Association of Northwest Indiana
Highland, IN
Email: dsa@dsaofnwi.org
Website: www.dsaofnwi.org
Facebook:@dsaofnwi
Dads Appreciating Down Syndrome (D.A.D.S.)
Indianapolis, IN
Phone: 317-523-5888
Email: john.goodrich@dadsnational.org
Website: www.dadsnational.org
Facebook:D.A.D.S. National (Dads Appreciating Down Syndrome)
SMILE on Down Syndrome
Newburgh, IN
Phone: 812-49-6049
Email: nina@smileondownsyndrome.org
Website: www.smileondownsyndrome.org
Facebook:@smilemileevansville
Chasing Dreams
Merrillville, IN
Phone:219-299-9049
Email: contact@chasingdreams.org
Website:www.chasingdreams.org
Facebook:@chasingdreamsinc
Columbus Area Down Syndrome Support Group
Columbus, IN
Phone:812-375-9594
Website:www.cadssg.org
Facebook: Columbus Area Down Syndrome Support Group
Down Syndrome Northwest Indiana & Chicagoland
Highland, IN
Phone:219-838-3656
Email:dsa@dsaofnwi.org
Website:www.dsaofnwi.org
Facebook:@dsaofnwi
Northwest Iowa Down Syndrome Society
Spencer, IA
Phone: 712-580-6671
Website: www.nwiadownsyndromesociety.org
Facebook: Northwest Iowa Down Syndrome Society
Hawkeye Area Down Syndrome Association
Cedar Rapids, IA
Email: eharlan@hadsa.org
Website: www.hadsa.org
Facebook:@HawkeyeAreaDownSyndrome
Tri-State Down Syndrome Network
Sioux Center, IA
Phone: 712-722-2142
Email: tristatedsnetwork@gmail.com
Facebook: Tri-State Down Syndrome Network
Designer Genes Down Syndrome Group
Waterloo, IA
Email: designergenes2005@yahoo.com
Facebook:@designergenesdsg
Down Syndrome Assocation of North Central Iowa
Mason, City, IA
Phone:704-491-6503
Email:dsanorthcentraliowa@gmail.com
Website: www.dsa-nci.com
Facebook:@DSAofNCI
Up with Downs/ Down Syndrome Family Support Group
Des Monies, IA
Phone:515-243-6685
Email:Laurie@upwithdown.org
Website:www.upwithdown.org
Facebook:@upwithdown.bg
Down Syndrome Innovations
Mission, KS
Phone: 913-384-4848
Email: info@kcdsi.org
Website: kcdsi.org
Facebook:@KCDSI
Instagram: @kcdsg
Arcare Inc
Overland Park, KS
Phone: 913-648-0233
Email:info@arcare.org
Website: www.arcare.org
Facebook:@arcarekc
Down Syndrome Society of Wichita
Wichita, KS
Phone: 316-651-0114
Email: info@dsswichita.org
Website: www.dsswichita.org
Facebook:@dsswichita
Southeast Kansas Down Syndrome Society
Chanute, KS
Phone:620-431-0470
Email:info@sekdss.com
Facebook:@sekdss
Down Syndrome Association of Central Kentucky
Lexington, KY
Phone: 859-494-7809
Email: dsack.org@gmail.com
Website: www.dsack.org
Facebook:@TheDownSyndromeAssociationofCentralKentucky
Down Syndrome of Louisville, Inc.
Louisville, KY
Phone: 502-495-5088
Email: info@dsoflou.org
Website: dsoflou.org
Facebook:@DownSyndromeOfLouisville
Down Syndrome of South Central Kentucky
Bowling Green, KY
Phone: 270-796-5002
Email: info@dssky.org
Website: www.dssky.org
Facebook:@dssky.buddyhouse
Green River Area Down Syndrome Association
Owensboro, KY
Phone: 270-925-0195
Email: info@gradsa.org
Website: www.gradsa.org
Facebook:@GRADSA
Stewart Home School
Frankfort, KY
Phone:502-227-4821
Email:info@stewarthome.com
Website: www.stewarthome.com
Facebook:@stewarthomeschool
Ups-n-Downs of Western Kentucky
Paducah, KY
Phone:270-444-9687
Email:upsndowns@dsawk.com
Website:www.dsawk.com
Down Syndrome Association of Acadiana
Lafayette, LA
Phone: 337-234-3109
Email: dsaa@dsaa.info
Website: www.dsaa.info
Facebook:@DSAAcadiana
Upside down, Inc.
Thibodaux, LA
Phone: 985-447-8188
Email: info@upside-downs.org
Website: www.upside-downs.org
Facebook:@upsidedowns1
Down Syndrome Association of Greater New Orleans
New Orleans, LA
Phone: 504-259-6201
Email: info@dsagno.org
Website: www.dsagno.org
Facebook:@dsagno
Down Syndrome Awareness Group
Baton Rouge, LA
Website: www.dsagbr.org
Facebook:@dsagbr
Up with Downs
Shreveport, LA
Phone: 318-797-8575
Email: upwithdowns318@gmail.com
Website: www.upwithdowns.org
Facebook: Up With Downs
Families Helping Families of Southwest Louisana
Baton Rouge, LA
Phone:337-436-2570
Email:info@fhfswla.org
Website:www.fhfswla.org
Facebook:@fhfswla
Up4Downs of Southwest Louisana
Lake Charles, LA
Phone:337-582-6138
Email:dseaux@up4downswla.org
Website:www.up4downswla.org
Facebook:@DSAofSWLA
Maine Down Syndrome Network
Windham, ME
Phone: 866-571-2223
Email: info@dsmaine.org
Website: www.dsmaine.org
Facebook:@dsmaine
Down Syndrome Association of Maryland
Baltimore, MD
Phone: 410-321-5434
Email: director@DSAmd.org
Website: www.DSAmd.org
Facebook:@DSAMaryland
Down Syndrome Network of Montgomery County (DSNMC)
Rockville, MD
Phone: 301-979-1112
Email: admin@dsnmc.org
Website: www.dsnmc.org
Facebook:@dsnmcmaryland
Anne Arundel County Down Syndrome Connection
Arnold, MD
Phone: 888-279-2279
Email: t21connection@yahoo.com
Website: www.downsyndromeconnection.com
Facebook:@dsconnectionaac
F.R.I.E.N.D.S
Middletown, MD
Phone: 301-371-7047
Email: friendsoffredco@gmail.com
Website: www.friendsoffredco.org
Parents of Children with Down Syndrome of Prince George’s County
Fort Washington, MD
Phone:301-925-7050
Email:podsofpgc@gmail.com
Website:www.podsopgc.org
Facebook:@podsofpgc
Down Syndrome Association of Southern Maryland
Hughesville, MD
Phone:240-461-4361
Email:info@dsasmd.org
Website:https://www.dsasmd.org
Facebook: Down Syndrome Association of Southern Maryland
Massachusetts Down Syndrome Congress
Burlington, MA
Phone: 781-221-0024
Email: mdsc@mdsc.org
Website: www.mdsc.org
Facebook:@massdscongress
Berkshire County ARC Down Syndrome Family Group
Pittsfield, MA
Phone: 413-499-4241
Email: mtiffany@bcarc.org
Website: www.bcarc.org/programs/dsfg
Facebook:@BCArcDSFG
Down Syndrome Resource Group of Western MA
Springfield, MA
Phone: 800-536-2910, 413-794-8342
Email: info@dssupport.org
Website: www.dssupport.org
Facebook:@DSRGWM
Down Syndrome Resources Group of Western MA
Springfield, MA
Phone:413-794-8342
Email:info@dssupport.org
Website:www.dssupport.org
Facebook:@DSRGWM
Down Syndrome Association of West Michigan
Grand Rapids, MI
Phone: 616-956-3488
Email: info@dsawm.org
Website: www.dsawm.org
Facebook:@dsawestmi
Graceland Farms Foundation
Nunica, MI
Phone: 517-648-1114
Email: jen@gracelandfarmsfoundation.org
Website: www.gracelandfarmsfoundation.org
Facebook: Graceland Farms Foundation
St. Clair County Down Syndrome Support Group
Port Huron, MI
Phone: 810-987-7928
Email: alyndamc@yahoo.com
Facebook: St. Clair County Down Syndrome Support Group
Capital Area Down Syndrome Association
Lansing, MI
Phone: 517-333-6655
Email: info@cadsa.org
Website: www.cadsa.org
Facebook:@CADSA21
Upper Peninsula Down Syndrome Association
Marquette, MI
Phone: 906-250-0963
Email: UPDownsyndrome@gmail.com
Facebook:@UpperPeninsula.biz
Down Syndrome Guild of Southeast Michigan
Royal Oak, MI
Phone: 248-556-5341
Email: info@dsgsemi.org
Website: www.dsgsemi.org
Facebook:@dsgsemi
Families Exploring Down Syndrome
Sterling Heights, MI
Phone: 586-997-7607
Email:fedsofmichigan@gmail.com
Website: www.familiesexploringdownsyndrome.org
Facebook:@FamiliesExploringDownSyndromeOfMichigan
Down Syndrome Association of Northwest Michigan
Traverse City, MI
Phone:(231) 357-8383
Email:dsupnorth@gmail.com
Website:https://www.dsupnorth.org
Facebook:@DSUpNorth
Down Syndrome Support Team
Saline, MI
Phone: (313) 608-7374
Email: eluther@downsyndromesupportteam.com
Website: www.downsyndromesupportteam.com
Facebook: Down Syndrome Support Team
Down Syndrome Association of Minnesota
St. Paul, MN
Phone: 651-603-0720
Email: dsamn@dsamn.org
Website: www.dsamn.org
Facebook:@DSAMN
Jack’s Baskets
Arden Hills, MN
Phone:651-456-8321
Email:info@jacksbasket.org
Website:www.jacksbasket.org
Facebook:@jacksbasket
Northeast Mississippi Down Syndrome Society
Saltillo, MS
Email: nemdss@bellsouth.net
Website: NEMDSS
Facebook: Northeast Mississippi Down Syndrome Society (NEMDSS)
Gulf Coast Down Syndrome Society
Gautier, MS
Phone:228-447-0270
Email:info@gcdss.org
Website:www.gcdss.org
Facebook:@gcdssinc
Mississippi Down Syndrome Advocacy Coalition
Email:mdscac21@gmail.com
Facebook:@MDSAC21
Central Mississippi Down Syndrome Society
Jackson, MS
Phone: 601-385-DOWN (3696)
Email: info@cmdss.org
Website: https://cmdss.org/
Down Syndrome Association of Greater St. Louis, Inc.
St. Louis, MO
Phone: 314-961-2504
Email: info@dsagsl.org
Website: www.dsagsl.org
Facebook:@dsagsl
Down Country
Taylor, MO
Phone: 217-617-3568
Email: info@upatdowncountry.com
Website: www.upatdowncountry.com
Down Syndrome Group of the Ozarks
Springfield, MO
Phone: 417-885-9905
Email: info@ozarksdsg.org
Website: www.ozarksdsg.org
Facebook:@dsgo.life
Montana Down Syndrome Association
Missoula, MT
email: Philip@mtdsa.org
website: www.mtdsa.org
Facebook:@MontanaDSAKalispell
DREAM (Down syndrome Research Education and Advocacy of Montana)
Whitefish, MT
Phone:406-599-2556
Email:dreambuddywalk@gmail.com
Website:www.dream-mt.org
Facebook:@mtdreamers
Family Outreach (Region IV)
Helena, MT
Phone:406-443-3083
Email:smarisdotter@familyoutreach.org
Website:www.myfamilyoutreach.org
Yellowstone County Extra Special Kids
Billings, MT
Phone:406-256-0469
Email:christina0469@msn.come
Down Syndrome Association for Families of Nebraska
Lincoln, NE
Phone: 402-421-1338
Email: director@dsafnebraska.org
Website: www.dsafnebraska.org
Facebook:@dsafnebraska.org
Down Syndrome Advocates in Action Nebraska
Lincoln, NE
Phone: 402-413-0199
Email: info@dsanne.org
Website: www.dsaane.org
Facebook:@dsaane
Down Syndrome Alliance of the Midlands
Omaha, NE
Phone: 531-375-5791
Email: info@dsamidlands.org
Website: www.dsamidlands.org
Facebook:@omahadownsyndrome
Little Leaf Learning Center
Omaha, NE
Phone:402-515-7234
Email:president@friendsofdownsyndrome.org
Facebook:@LittleLeafLearningCenter
Children’s Hospital and Medical Center Down Syndrome Clinic
Omaha, NE
Phone: 402-955-6100
Website: www.childrensomaha.org/department/downsyndrome
Email: tnorton@childrensomaha.org
Facebook: @ChildrensOmaha
Down Syndrome Organization of Southern Nevada
Las Vegas, NV
Phone: 702-648-1990
Email: ceo@dsosn.org
Website: www.dsosn.org
Facebook:@DownSyndromeSNV
Down Syndrome Network of Northern Nevada
Reno, NV
Phone: 775-828-5159
Email: dsnnninfo@gmail.com
Website: www.dsnnn.org
Facebook:@DSNNN
Pahrump Disability Outreach Program
Pahrump, NV
Phone:702-516-0847
Email:staff@pdop.info
Website:http://www.pahrumpdisabilityoutreachprogram.com/index.html
Facebook:@PahrumpDisabilityOutreachProgram
Down Syndrome Connections Las Vegas
Las Vega, NV
Phone: 702-875-5007
Email: downsyndromeconnectionslv@gmail.com
Website: www.downsyndromeconnections.org
Facebook:@downsyndromeconnectionslv
New Hampshire Down Syndrome Association
Londonderry, NH
Phone: 603-479-1589
Email: info@newhampshiredsa.org
Website: www.newhampshiredsa.org
Facebook:@NewHampshireDSA
BUDS “Bringing Up Down Syndrome”
Voorhees, NJ
Phone: 856-985-5885
Email: information@bringingupdownsyndrome.org
Website: www.bringingupdownsyndrome
Facebook:@bringingupdownsyndrome
Down Syndrome Association of Southern New Jersey
Bellmawr, NJ
Email: cochair@dsasnj.com
Website: www.dsasnj.com
Facebook:Down Syndrome Association of Southern New Jersey
Jersey Shore Down Syndrome Association
Brick, NJ
Phone: 732-255-5737
Website: www.jsdsa.org
Facebook:@jsdsa
Network 21
Tinton Falls, NJ
Phone: 908-309-1588
Email: mjrobertson510@gmail.com
Website: www.dsnetwork21.com
Facebook:Network21: Supporting Families with Down Syndrome
Down Syndrome Association of Central New Jersey
Ewing, NJ
Phone: 866-369-6796
Email: dsacnj@dsacnj.org
Facebook: Down Syndrome Association of Central New Jersey
21 Down
Northfield, NJ
Phone: 609-625-8141
Email: info@21down.org
Website: www.21down.org
Facebook:21Down
Central New Jersey Down Syndrome Parent Advocacy Group
North Plainfield, NJ
Phone:908-756-6774
Email:dsparentgroupnj@gmail.com
Website:www.dsparentgroup.org
Down Syndrome Support Group of Family Resources Associates
Red Bank, NJ
Phone:732-747-5310
Email:info@frainc.org
Website:www.frainc.org
Facebook:@FRAOnline
Down Syndrome Foundation of Southeastern New Mexico
Roswell, NM
Phone: 575-622-1099
Email: info@dsfsenm.org
Website: www.dsfsenm.org
Facebook:@DownSyndromeFoundationOfSenm
Rio Grande Down Syndrome Network
Albuquerque, NM
Phone: 505-382-5061; 505-382-5067
Email: info@rgdsn.org
Website: www.rgdsn.org
Facebook:@RGDSN
Southern New Mexico Down Syndrome Families
Phone:575-993-4817
Email:snmdsf@gmail.com
Website:snmdsf.org
Down Syndrome Parent Support Group of Genesee County
Oakfield, NY
Email: dspsg1@gmail.com
Website: www.downsyndromegenesee.org
Facebook:@dspsggc
Alexander’s Angels
Jericho, NY
Phone: 516-361-7263
Email: alexandersangels@gmail.com
Website: www.alexandersangels.org
Facebook: Alexander’s Angels
Down Syndrome Parent Group of Western New York
Tonawanda, NY
Phone: 716-832-9334
Email: dspgwny@hotmail.com
Website: www.dspgwny.org
Facebook:@DSPGWNY
Trisomy 21 Foundation of Northern NY
Black River, NY
Phone:315-788-0869
Email:tri21nny@yahoo.com
Website:downsyndromesupportnny.org
Facebook:@Tri21nny
Down Syndrome Aim High Resource Center, Inc.
Albany, NY
Phone: 518-738-0020 x 3726
Email: modasra@cfdsny.org
Website: www.dsahrc.org
Facebook:@DSAHRC
Down Syndrome Association of the Hudson Valley
Gardiner, NY
Phone: 845-226-1630
Email: info@dsahv.org
Website: www.dsahv.org
Facebook:@DSAHV
Arc of Westchester
Hawthorne, NY
Phone: 914-949-9300
Email: info@westchesterarc.org
Website: www.arcwestchesterarc.org
Facebook:@ArcWestchesterNY
Down Syndrome Info Network of the Twin Tiers
Horseheads, NY
Phone: 607-734-6151
Email: carc@stny.rr.com
Website: www.downsyndromeintt.org
Facebook:@dsintt
Flower City Down Syndrome Network
Rochester, NY
Phone: 585-568-7421
Email: fcdsn21@gmail.com
Website: www.fcdsn.com
Facebook:@fcdsn
Southern Tier Down Syndrome Information Network
Southern Tier, NY
Phone: 607-621-5514
Email: dsin.stny@yahoo.com
Down Syndrome Network of Northern New York
Watertown, NY
Phone: 315-788-0869
Website: www.downsyndromesupportnny.org
Facebook:@Tri21nny
Kennedy-Willis Center on Down Syndrome
Edmeston, NY
Phone:607-965-8655
Email:info@pathfindervillage.org
Mohawk Valley Down Syndrome Support and Awareness Group
Utica, NY
Phone:315-738-0794
Email:info@upstatecp.org
Website:upstatecp.org/mohawk-valley-down-syndrome-awareness-group
Facebook:@upstatecp
GiGi’s Playhouse (New York City)
New York, NY
Phone:646-801-7529
Email:nyc@gigisplayhouse.org
Website:gigisplayhouse.org/newyork
Facebook:@gigisplayhouseNYC
GiGi’s Playhouse (Westchester)
Ardsley, NY
Phone:914-479-5566
Email:westchester@gigisplayhouse.org
Website:gigisplayhouse.org/westchester/
Facebook:@gigisplayhousewestchester
Down Syndrome Network of Onslow & Carteret Counties
Jacksonville, NC
Phone: 910-719-3321
Email: president@dsnocc.org
Website: www.dsnocc.org
Facebook:@DSNOCC
Down Syndrome Association of Greater Charlotte
Charlotte, NC
Phone: 704-536-2163
Email: info@dsa-gc.org
Website: www.dsagreatercharlotte.org
Facebook:@DSAGreaterCharlotte
North Carolina Down Syndrome Alliance
Raleigh, NC
Phone: 984-200-1193
Email: info@ncdsalliance.org
Website: www.ncdsalliance.org
Facebook:@NorthCarolinaDownSyndromeAlliance
Down Syndrome Network of Greater Greensboro
Greensboro, NC
Phone: 336-832-6507
Email: dsngginfo@gmail.com
Website: www.dsngg.org
Facebook:@dsngg
Cumberland County NC Down Syndrome Association
Lillington, NC 27546
Phone: 910- 922-5024
Email: ccncdsa@gmail.com
Western North Carolina Down Syndrome Alliance
Asheville, NC
Phone:828-707-3753
Email:alicemillerdsa@charter.net
Website:wncdsa.org
Facebook:@WNCDSA
Down Syndrome Association of Greater Winston-Salem
Winston-Salem, NC
Phone: 336-739-DOWN (3696)
Email: info@dsagws.org
Website: www.dsagws.org
Facebook:@dsagws
North Carolina Down Syndrome Alliance
Raleigh, NC
Phone:984-200-1193
Email:info@ncdsalliance.org
Website:www.ncdsalliance.org
Facebook: North Carolina Down Syndrome Alliance
Designer Genes of North Dakota
Bismarck, ND
Email: info@designergenesnd.com
Website: www.designergenesnd.com
Facebook:@DesignerGenesND
BUDS of Greater Grand
Greater Grand, ND
Email:buds.news@gmail.com
Website:www.facebook.com/pg/budsggf
Facebook:@budsggf
GiGi’s Playhouse Fargo
Fargo, ND
Phone:701-551-7529
Email:fargo@gigisplayhouse.org
Website:gigisplayhouse.org/fargo/
Facebook:@gigisplayhousefargo
Down Syndrome Association of Greater Cincinnati
Cincinnati, OH
Phone: 513-761-5400
Email: dsagc@dsagc.com
Website: www.dsagc.com
Facebook:@DSAGC
The Up Side of Downs of Northeast Ohio
Independence, OH
Phone: 216-447-8763
Email: info@usod.org
Website: www.usod.org
Facebook:@upsideofdowns
Specs4US
Burton, OH
Phone:1-800-586-1885
Email:info@specs4us.com
Website:www.specs4us.com
Facebook:@SPECS4US
Down Syndrome Association of Greater Toledo
Sylvania, OH
Phone: 419-536-4321
Email: information@dsagt.org
Website: www.dsagt.org
Facebook:@dsatoledo
Down Syndrome Association of Central Ohio
Columbus, OH
Phone: 614-263-6020
Email: info@dsaco.net
Website: www.dsaco.net
Facebook:@DSACO.Cbus
Miami Valley Down Syndrome Association
Dayton, OH
Phone: 937-222-0744
Email: office@mvdsa.org
Website: www.mvdsa.org
Facebook:@MiamiValleyDSA
The Down Syndrome Association of the Valley
Boardman, OH
Phone: 330-726-3728
Email: info@dsav.org
Website: www.dsav.org
Facebook:@DownSyndromeAssociationoftheValley
The Ups of Downs
Wellsville, OH
Phone: 330-532-3684
Email: info@theupsofdowns.org
Website: www.theupsofdowns.org
Facebook: The Ups of Downs, Tri-State Down Syndrome Support Group
GiGi’s Playhouse Cleveland
Lakewood, OH
Phone: 216-529-3333
Email: cleveland@gigisplayhouse.org
Website: www.gigisplayhouse.org/cleveland
Facebook: @gigisplaygousecleveland
Down Syndrome Association of Central Oklahoma
Oklahoma City, OK
Phone: 405-463-5641
Email: info@dsaco.org
Website: www.dsaco.org
Facebook:@DSACentralOklahoma
Down Syndrome Association of Tulsa, Inc.
Tulsa, OK
Phone: 918-804-3728
Email: info@dsat.org
Website: www.dsat.org
Facebook:@downsyndromeassociationoftulsa
Down Syndrome Association of Southern Oregon
Ashland, OR
Phone: 541-776-9805
Email: mail@dsaso.org
Website: www.dsaso.org
Facebook:@inclusionworksoregon
Down Syndrome Connections Northwest
Hayden, OR
Phone: 208-755-5079
Email: info@downsyndromeconnections.com
Website: www.dsconnectionsnw.org
Facebook:@Dsconnectionsnw
Willamette Valley Down Syndrome Association
Salem, OR
Phone:503-798-5864
Email: info@wvdsa.org
Website:www.wvdsa.org
Facebook:Willamette Valley Down Syndrome Association
Delaware County Down Syndrome Interest Group
Springfield, PA
Phone: 610-544-4025
Email: DELCODSIG@yahoo.com
Website: www.delcodsig.org
Centre County Down Syndrome Society
State College, PA
Phone: 814-235-1981
Email: ccdssociety@gmail.com
Website: www.centrecountydownsyndrome.org
Facebook:Centre Region Down Syndrome Society
Down Syndrome Group of Erie County
Erie, PA
Phone: 814-833-2143
Email: downsynerie@yahoo.com
Website: www.downsyndromeerie.org
Facebook:@downsyndromeerie
Chester Co. Down Syndrome Interest Group
Exton, PA
Phone: 610-889-0291
Email: ccdsig@ccdsig.org
Website: www.ccdsig.org
Facebook:@CCDSIG
Down Syndrome Association of Pittsburgh
Pittsburgh, PA
Phone: (412) 565-9936
Email: info@dsapgh.org
Website: www.dsapgh.org
Facebook:@dsapgh
Bucks County Down Syndrome Interest Group
Kintnersville, PA
Phone: 215-766-0890
Email: dgsantoro@gmail.com
Website: www.bcdsig.org
Lancaster Down Syndrome Advocates
Lancaster, PA
Phone: 717 478-8537
Email: contact@lancasterdsa.or
Website: www.lancasterdsa.org
Facebook:@BCDSIG
Montgomery County Down Syndrome Interest Group of PA
Blue Bell, PA
Phone:
Email: info@mcdsig.org
Website: www.mcdsig.org
Facebook: Montgomery County Down Syndrome Interest Group of PA (MCDSIG)
Eastern Pennsylvania Down Syndrome Center
Trexlertown, PA
Phone: 610-402-0184
Website: www.epdsc.net
Facebook:@EasternPADownSyndromeCenter
Central PA Down Syndrome Awareness Group
Carlisle, PA
Phone:717-218-0242
Email:info@cpadsa.org
Website:www.cpadsag.org
Facebook:Central PA Down Syndrome Awareness Group
Hopes and Dreams Foundation
Southampton, PA
Phone:215-264-2859
Email:info@hopesanddreamsfoundation.org
Website:www.hopesanddreamsfoundation.org
3.21 For Life
Hummelstown, PA
Email:321forlifepa@gmail.com
Website:www.321forlife.com
Facebook:@321forlifepa
Trisomy 21 Parent Program
Philadelphia, PA
Phone: 267-426-5283
Website:https://www.chop.edu/health-resources/trisomy-21-parent-peer-program.org
Mis Amigos De Sindrome de Down, Inc.
Carolina, PR
Phone: 787-791-3249
Email: yolanda@masdpr.net
Website: www.masdpr.net
Madres Innovadoras de Personas con sindrome de Down
Las Piedras, PR
Phone: 787-312-5574
Email: madresinnovadoras@gmail.com
Website: www.madresinnovadoras.blogspot.com
Fundación Puertorriqueña Síndrome Down
San Juan, PR
Phone: 787-283-8210
Email: fpsd@coqui.net
Website: www.sindromedown.org
Down Syndrome Society of Rhode Island
Cranston, RI
Phone: 401-463-5751
Email: coordinator@dssri.org
Website: www.dssri.org
Facebook:@DSSRhodeIsland
Family Connections
Columbia, SC
Phone: 822-578-8750
Email: info@familyconnectionsc.org
Upside of Downs of Aiken
Aiken, SC
Email: info@aikenupsidedowns.org
Website: www.aikenupsidedowns.org
Facebook:Upside of Downs of Aiken
Down Syndrome Family Alliance
Greenville, SC
Phone: 864-884-5062
Facebook:@2015BuddyWalkGreenvilleSC
Down Syndrome Association of Lowcountry
Mt. Pleasant, SC
Phone: 843-553-3725
Email: dsalowcountry@gmail.com
Website: www.dsalowcountry.org
The Grand Strand Down Syndrome Society
Myrtle Beach, SC
Phone: 843-283-0890
Email: grandstranddss@hotmail.com
Website: www.grandstrandds.org
Facebook:@dsalowcountry
Down Syndrome Association of the Upstate
Greenville, SC
Phone:864-990-5549
Email:info@dsaupstate.org
Website:www.dsaotu
Facebook:@DownSyndromeAssociationoftheUpstate
New Directions Down Syndrome Association
Sioux Falls, SD
Phone: 605-610-8026
Email: info@newdirectionsdsa.com
Website: www.newdirectionsdsa.com
Facebook:@NewDirectionsDownSyndromeAssociation
Ups of Downs Family Support Group
Rapid City, SD
Phone:605-348-1358 or 605-877-1190
Email: upsofdownsblackhills1@gmail.com
Website: www.upsofdowns.org
Facebook: @upsofdowns
Chattanooga Down Syndrome Society
Chattanooga, TN
Email: chattanoogadownsyndromesociety@gmail.com
Website: www.chattanoogadownsyndrome.org
Facebook:@ChattanoogaDSS
Down Syndrome Awareness Group of East Tennessee
Knoxville, TN
Phone: 865-202-8867
Email: info@dsagtn.org
Website: www.dsagtn.org
Facebook:@dsagtn
Down Syndrome Association of Memphis and the Mid-South
Memphis, TN
Phone: 901-547-7588
Email: director@dsamemphis.org
Website: www.dsamemphis.org
Facebook:@DSAMemphis
Down Syndrome Association of Middle Tennessee
Nashville, TN
Phone: 615-386-9002
Email: alecia@somethingextra.org
Website: www.somethingextra.org
Facebook:@dsamt
F.R.I.E.N.D.S.
Johnson City, TN
Phone: 423-946-3734
Email: admin@dsfriends.net
Website: www.dsfriends.net
Facebook:@FRIENDS.TriCities
Panhandle Down Syndrome Guild
Amarillo, TX
Email: panhandledsg@yahoo.com
Website: www.panhandledsg.net
Facebook:@panhandledsg
Down Syndrome Association of Central Texas
Austin, TX
Phone: 512-323-0808
Email: admin@dsact.org
Website: www.dsact.org
Facebook:@DSACT
Down Syndrome Association of Brazos Valley
College Station, TX
Phone: 979-778-7010
Email: dsabv@yahoo.com
Website: www.dsabv.org
Facebook:@DownSyndromeAssociationBrazosValley
Down Syndrome Coalition for El Paso (DSCEP)
El Paso, TX
Phone: 915-241-1040
Email: info@dscep.org
Website: www.dscep.org
Facebook:@DSC4ElPaso
Down Syndrome Partnership of North Texas
Fort Worth, TX
Phone: 817-390-2970
Email: info@dspnt.org
Website: www.dspnt.org
Facebook:@dspnt
East Texas Down Syndrome Group
Longview, TX
Phone: 903-757-3516
Email: etdsgdirector@gmail.com
Website: www.etdsg.org
Facebook:@etdownsyndromegroup
Down Syndrome Guild of Dallas
Richardson, TX
Phone: 214-267-1374
Email: info@downsyndromedallas.org
Website: www.downsyndromedallas.org
Facebook:@DSGDallas
Friends of Down Syndrome
Houston, TX
Phone: 281-989-0345
Email: president@friendsofdownsyndrome.org
Website: www.friendsofdownsyndrome.org
Facebook:@friendsofdownsyndrome
Down By the Border
Brownsville, TX
Phone: 956-544-7727
Email: sergio@downbytheborder.com
Website: www.downbytheborder.org
Facebook:@dbtborder
Rio Grande Valley Down Syndrome Association
Edinburg, TX
Phone: 956-314-0821
Email: info@rgvdsa.org
Website: www.rgvdsa.org
Facebook:@rgvdsa
Down Syndrome Association of Houston
Houston, TX
Phone: 713-682-7237
Email: executivedirector@dsah.org
Website: www.dsah.org
Facebook:@DSAHouston
BUDS – Better Understanding of Down Syndrome
Lubbock, TX
Email: llowe@budsonline.net
Red River Valley Down Syndrome Society
Paris, TX
Phone: 903-783-1922
Email: info@rrvdss.org
Website: www.redriverdss.org
Facebook:@redriverdss
Down Syndrome Association of South Texas
San Antonio, TX
Phone: 210-349-4372
Email: tmauldin@dsastx.org
Website: www.dsastx.org
Facebook:@DSASTX
Galveston-Houston Families Exploring Down Syndrome
Houston, TX
Phone:281-736-8008
Email:admin@ghfeds.org
Website:www.ghfeds.org
Facebook:@GalvestonHoustonFamiliesExploringDownSyndrome
Heart of Texas Down Syndrome Network
Waco, TX
Phone:254-230-9782
Email:support@hotdsn.org
Website:www.hotdsn.org
Utah Down Syndrome Foundation
Salt Lake City, UT
Phone: 801-446-1994
Email: info@udsf.org
Website: www.udsf.org
Facebook:@udsf.org
Champlain Valley Down Syndrome Group
Burlington, VT
Phone: 802-922-0428
Email: info@cvdsg.org
Website: www.cvdsg.org
Facebook:@ChamplainValleyDownSyndromeGroup
Virginia Down Syndrome Association
Richmond, VA
Phone: 804-447-4713
Email: info@virginiadsa.org
Website: www.virginiadsa.org
Facebook:@downsyndromeva
Down Syndrome Association of Roanoke
Roanoke, VA
Phone:540-772-6460
Website:www.dsar.org
Down Syndrome Association of Northern Virginia
Oakton, VA
Phone: 703-621-7129
Email: heathert@dsanv.org
Website: www.dsanv.org
Facebook:@DownSyndromeAssociationOfNorthernVirginiaDSANV
Down Syndrome Association of Hampton Roads
Norfolk, VA
Phone: 757-466-3696
Email: office@dsahr.org
Website: www.dsahr.org
Facebook:@dsahr.org
Down Syndrome Association of Virginia Peninsula
Yorktown, VA
Phone: 757-890-3013
Email: dsavp21@yahoo.com
Facebook: Down Syndrome Association of Virginia Peninsula
Down Syndrome Community
Seattle, WA
Phone: 206-431-9777
Email: info@downsyndromecommunity.org
Website: www.downsyndromecommunity.org
Facebook:@DScommunity
Down Syndrome of Snohomish County
Snohomish County, WA
Phone: 425-263-1039
Email: info@dsasc.org
Website: www.dsasc.org
Down Syndrome Network of West Virginia
Cross Lanes, WV
Phone: (304) 545-6613
Email: dsnwvinfo@gmail.com
Website: www.dsnwv.org
Facebook:@dsnwv
Wisconsin Upside Down
Hartland, WI
Phone: 262-443-8690
Email: info@wiusd.org
Website: www.wiusd.org
Facebook:@WIUSD
Down Syndrome Association of Wisconsin, Inc.
Milwaukee, WI
(communities also supported include: Central WI, Chippewa Valley, Fox Cities, Green Bay, Kenosha/Racine/Walworth, La Crosse, South Central WI, Milwaukee, Sheboygan, St Croix River Valley
Phone: 414-327-3729
Email: info@dsaw.org
Website: www.dsaw.org
Facebook:@dsawisconsin
Down Syndrome Association of Wisconsin – Fox Cities
Appleton, WI
Phone: 920-418-5533
Email: info@dsawfoxcities.org
Website: www.dsawfoxcities.org
Facebook:@DSAWFC
Down Syndrome Association of Wisconsin – Madison
Madison, WI
Email:southcentral@dsaw.org
Website:www.dsaw.org/southcentral/
Facebook:@dsawchip
Down Syndrome Association of Wisconsin-Green Bay
Green Bay, WI
Phone:920-703-8784
Email:infogreenbay@dsaw.org
Facebook:@DSAWGB
Down Syndrome Association of Wisconsin-Chippewa
West Allis, WI
Phone:715-379-0563
Email:info@dsawchippewavalley.org
Website:www.dsawchippewavalley.org
Facebook:@dsawchip
Wyoming Down Syndrome Association
Laramie, WY
Phone: 307-742-6641
Website: www.wydsa.org
Facebook:@WyDSA
Down Syndrome NSW
New South Wales, Australia
Email: library@dsansw.org.au
Up with Down Foundation
Bulgaria
Phone: 359-876-7754
Email: upwithdownbg@gmail.com
Website:www.upwithdown.org
Facebook:@upwithdownbg
Complementa
Chile
Email: contacto@complementa.cl
Website:www.complementa.cl
Facebook:@fundacioncojmplementa
Creer Para Incluir
Chile
Email: contactocreerparaincluir@gmail.com
Facebook:@creerparaincluir
Down Syndrome Foundation of Nigeria
Lagos, Nigeria
Phone: 234-803-228-5545
Website: www.dsanigeria.org
Down Syndrome Association of Toronto
Toronto Ontario, ON
Phone: 416-966-0990
Email: info@dsat.ca
Website: www.dsat.ca
Down Syndrome Family Network
Valsayn, Trinidad, and Tobago
Phone: 868-663-0865
Email: dsfamilynetwork@gmail.com
Website: www.dsfamilynetwork.org